NCUK Virtual Patient Handbook

Myth #7 - Everyone with Neuroendocrine Cancer has or will develop Carcinoid Syndrome Less than half of all neuroendocrine cancers are associated with abnormal hormone release. Neuroendocrine cancer-related syndromes, not just carcinoid syndrome, occur due when neuroendocrine cancer causes changes to the cell resulting in the abnormal production and excess release of specific peptides / hormones by neuroendocrine cancer cells. These syndromes occur in approximately 40% of all neuroendocrine tumours, rarely occurring in neuroendocrine carcinomas.

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