One such genetic condition is multiple neuroendocrine neoplasia type 1 (MEN-1) which carries an increased risk of neuroendocrine cancers occurring. • 3 out of 4 (75%) of MEN1 patients will develop one of several types of pancreatic neuroendocrine cancers and 1 in 10 (10%) of those will develop more than one type of pancreatic primary • Up to 5% (1 in 20) of MEN1 patients may have other primary site neuroendocrine cancers e.g., lung Understanding blood results All patients in the UK have the right to see their own test results. However, as with consent, there may be some exceptions. Test results may be in the form of a paper report given to you, or a report made available to you online via a GP record system or hospital information system: For example - a “patient portal” such as myhealth@UHB , which allows patients at University Hospitals Birmingham NHS Foundation Trust (UHB) to remotely access some of their clinical information, including letters, appointments and laboratory results.
Click here for further information on MEN1 and other genetic conditions associated with Neuroendocrine Cancers at our sister charity AMEND
Made with FlippingBook - Share PDF online