I. The Patient Journey
Comments about financial considerations that made it difficult to receive the medical care he or she wanted:
“Surgeon did not accept any insurance so it was paid out of pocket.”
“Adjuvant treatment not covered by insurance was expensive.”
“Cost for travel and lodging for monthly visits to PA.”
“At time of diagnosis I had a plan that limited coverage to New Jersey, my state of residence.”
“There are some injections for macular edema that are not FDA approved that may clear the edema faster than Avastin. Those are typically not covered by insurance.”
“I had to pay for the surgery prior to having it. I had to borrow the money from a family member.”
“My Insurance plan requires I seek medical care at the hospital I work for and they don’t provide the service.” “My first ‘surgery’ (brachytherapy) was delayed because provider decided not to accept my insurance.”
“Travel to specialists as well as getting referred to specific specialists.”
“High cost of adjunctive care not covered by traditional insurance coverage.”
“ACA is not affordable due to outrageous deductibles.”
“Time missed from work. Primary earner for family of four.”
2023 VISION Registry Data Report
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