I. The Patient Journey
Approximately how far did the patient travel to receive treatment for metastatic disease?
PATIENT VOICE
“When I was first diagnosed with ocular melanoma at the age of 30, my immediate thought was ‘Why Me?!’… what did I do wrong? What could I have done differently to prevent this? Having a registry that collects all our patient data together will hopefully provide insight on those questions! It’s such a blessing to have this first step of collecting information to start to formulate the potential reasons and figure out what we may have in common. “Ocular melanoma is a rare cancer and it took a lot of effort and collaboration from patients, researchers, doctors, and nonprofits to get a registry funded and set up. Contributing my information is a small gesture towards ensuring that hard work turns into something fruitful. It only takes a few minutes of time to answer questions!” — VISION Participant in USA
4%
Less than 10 miles
13%
10 to <50 miles
2%
50 to <100 miles
4%
100 to <500 miles
2%
500 to <1,000 miles
0%
Over 1,000 miles
75%
Not reported
2023 VISION Registry Data Report
29
Made with FlippingBook Ebook Creator