I. The Patient Journey
At the time of diagnosis with metastasis, what was most important to the patient when making choices about their care?
PATIENT VOICE
“I came across the efforts of CURE OM’s VISION Registry when I was diagnosed with ocular melanoma. Completing the different registry surveys made me aware of the factors that are present under this type of condition and the importance of taking them into account. I keep visiting and updating the VISION Registry hoping that it will help others as it has helped me.” — VISION Participant in Mexico
% of patients ranking 1st, 2nd or 3rd 86%
% of patients ranking 1st 45%
Most important issues
Most important issues
Long-term survival
Long-term survival
Does not preclude future treatment options
50%
31%
Ability to obtain care closer to home
45%
22%
Experience of the medical team in OM
Experience of the medical team in OM
45%
9%
Impact on family
Impact on family
22%
4%
Ability to obtain care closer to home
Overall quality of life
22%
4% 0% 0% 0%
Expenses for care
Overall quality of life
Does not preclude future treatment options
18%
Expenses for care
4%
Insurance coverage
Insurance coverage
0%
Support services offered
Support services offered
2023 VISION Registry Data Report
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