PATIENT VOICE
PATIENT VOICE
“It’s no big secret that ocular melanoma is a terrible disease. To add to this, we who have ocular melanoma are faced with a bewildering number of treatment options, almost all of which are experimental. The only way to sort out what works and what does not work is to have data on what happens to patients. The VISION patient registry is, in my opinion, a vital tool to achieve this goal. Other successful cancer treatments were driven by intense collaboration among patients and oncologists so that they could quickly stop ineffective treatments and build on those treatments that were having some initial success. That kind of effort in the OM world, using tools such as VISION could eventually lead to more effective treatments and even a cure.” — VISION Participant in USA
“As a Medical Professional who has been an acute care, and ER, nurse, for more than 43 years, discovering I had ocular melanoma during a routine eye exam came as quite a shock. “In all those years I had never heard of ocular melanoma. “I offered my data to VISION in the hopes that we may find some commonalities that could lead to a cure. It is so important to gather the data, and to keep the statistics that are necessary for meaningful research. I encourage everyone who has ocular melanoma to share their information with vision. “Knowledge is power. Individually our data is useless but by putting it out there together we could make a difference.” — VISION Participant in USA
2023 VISION Registry Data Report
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