III. Appendix
VISION Steering Committee Acknowledgment
Are you interested in getting involved in VISION? If so, please reach out to us at: vision@melanoma.org.
We extend our sincerest appreciation to the members of the CURE OM VISION Steering Committee. Their support and dedication in helping to create and launch the VISION Registry in 2021 cannot be overstated. We also take this moment to acknowledge and thank them for their efforts in helping to create the 2023 VISION Registry Data Report.
Sara M. Selig, MD, MPH Co-Founder and Director, CURE OM Boston, MA
Linda O’Brien Patient (Primary Disease) 9 years NED (No Evidence of Disease) Shana Ratner, MD, FACP Daughter and Internist Chapel Hill, NC Family Member of OM Patient Associate Professor Section Chief for Education and Clinical Practice Division of General Internal Medicine and Clinical Epidemiology Associate Director, UNC Institute for Healthcare Quality Improvement Ashley Land Schoenfisch Family Member and Epidemiologist Chapel Hill, NC Cody Chiuzan, PhD Statistician New York, NY Associate Professor Institute of Health System Science Feinstein Institutes for Medical Research Northwell Health Kerry Goetz, M.S. Associate Director, Office of Data Science and Health Informatics Bethesda, MD National Eye Institute
Andrew E. Aplin, PhD Deputy Director Philadelphia, PA
Ivana Kim, MD Ocular Oncologist Boston, MA Associate Professor of Ophthalmology, Harvard Medical School Co-Director, Ocular Melanoma Center, Massachusetts Eye and Ear Infirmary Miguel A. Materin, MD Professor of Ophthalmology Durham, NC Professor of Radiation Oncology Director, Ophthalmic Oncology Duke University Eye Center Rich Carvajal, MD Medical Oncologist New York, NY Deputy Physician-in-chief and Director of Medical Oncology Northwell Health Cancer Institute Marlana Orloff, MD Medical Oncologist Philadelphia, PA Assistant Professor Department of Medical Oncology Thomas Jefferson University Hospital Renee M. Zalinsky, RN, OCN Metastatic Uveal Melanoma Navigator Philadelphia, PA
Melanoma Research Foundation Associate Physician, Brigham and Women’s Hospital
Sidney Kimmel Cancer Center The Kalbach-Newton Professor in Cancer Research Department of Pharmacology, Physiology and Cancer Biology Thomas Jefferson University Susan Vine Patient Queensland, Australia Ocumel Australia and New Zealand Started the support group and Ocular Melanoma Awareness–Aus. Facebook page
Instructor, Harvard Medical School Associate Director, COPE Program Director of US Engagement, Partners in Health Bertil Damato, LRCP, MRCS, MD,
PhD, FRCOphth Ocular Oncologist Oxford, United Kingdom University of Oxford
Senior Clinical Research Fellow and Honorary Consultant Ophthalmologist at Oxford Eye Hospital John Radcliffe Hospital Dan S. Gombos, MD, FACS Ocular Oncologist Houston, Texas Professor and Chief Section of Ophthalmology Department of Head and Neck Surgery, Division of Surgery The University of Texas MD Anderson Cancer Center
Chad Kimbler, BSBA, MA Patient (Metastatic Disease)
I was diagnosed at age 29 in 2015. My genetic testing revealed Castle Class 2, and I developed metastatic disease in 2020. My favorite pasttime is exploring the friendly skies. I am a private pilot, but haven’t been up since my encounter with Ocular Melanoma. Nigel Deacon Patient Diagnosed with ocular melanoma in 2010 which metastasized in 2012. Founded Ocumel Canada to advocate on behalf of Canadian OM patients.
Senior Cancer Care Coordinator Sidney Kimmel Cancer Center
2023 VISION Registry Data Report
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