Education, Awareness and Prevention / Education — Rare Subtypes
Ocular Melanoma (OM) Support Group
Eyes on a Cure: 14th Annual Eyes on a Cure Ocular Melanoma Patient and Caregiver Symposium IN COLLABORATION WITH CLEVELAND CLINIC, COLE EYE INSTITUTE, 125 ATTENDEES Sessions included: • Low Vision Adjustments and Resources • Melanoma: The Role of Adjuvant Therapies • Financial Navigation
The Ocular Melanoma online support group had a successful year, with up to 25 participants per group. The group included caregivers and patients with both primary and metastatic OM, creating a diverse and supportive community. We had expert speakers who shared about: • Low vision support • Peer-to-peer support • Mental health and cancer exercise • Nutrition • Cancer and Careers
• Empowered Care: Navigating the Journey of Supporting a Loved One with Cancer • Support Group Breakout by Diagnosis Type (metastatic, primary and caregiver) • Journal Session: Ink and Intentions
To join an Ocular Melanoma Support Group, contact CUREOM@melanoma.org
New Rare Subtype Resources for Patients and Caregivers
Five Rare Melanoma “Ask the Expert” Webinars Were Held • Focusing on the Liver: Treatment Approaches in Metastatic Uveal Melanoma • 2025 ASCO Highlights for the Uveal Melanoma Community • Ask the Expert: Pediatric Melanoma: Early Detection, Unique Presentations and Prevention • Ask the Expert: Mucosal Melanoma — Current and Emerging Treatments, Research and Patient Perspectives • Ask the Expert: Navigating Early Detection and Management in Ocular Melanoma
• New Acral Melanoma Educational Webpage — Launched a new acral melanoma website page providing accessible, patient-focused information to support awareness, understanding and informed care • Updated Rare Melanoma Website Pages — Updated rare melanoma subtype webpages, including mucosal, ocular, pediatric and AYA (adolescent and young adult), to reflect current research, treatment approaches and patient-centered information • Updated Ocular Melanoma Patient and Caregiver Resources — Revised and updated the Ocular Melanoma Patient and Caregiver Guide and updated the Questions to Ask Your Doctor resources for primary and metastatic ocular melanoma, including a dedicated caregiver version for caregivers of primary and metastatic ocular melanoma patients • New Acral and Mucosal Educational Materials — Developed new acral and mucosal melanoma fact sheets and launched a new mucosal melanoma patient pamphlet to provide clear, accessible education for patients and caregivers
20 • Stewardship Report
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