What Is Patient Advocacy?

The PEN Network Manager program official ly launched in March 2020 with the goal “ to support health communities around important topics and provide navigation for the path to empowerment . Through various mediums , social media platforms and content formats , network managers develop specific messages , seek out resources and contribute to ampl ifying the needs of specific health communities via guidance of an establ ished editorial calendar .” For example , I ’ ve had the opportunity to write a variety of blog posts and participate in tweet chats on a number of different topics , including resi l ience , health l iteracy , telehealth , and what it ’ s l ike to be an adolescent and young adult ( AYA ) with cancer . It has been my greatest privi lege to connect with other patients through this content , inspiring them to be their own advocate . To find PEN ’ s current team of network managers , visit here . Cl icking on each person ’ s picture wi l l bring you to their bio as wel l as content they have created , including recipe guides , interviews , comedy sketches , infographics , and more . Note also that each manager has a personal PEN emai l that you can use to contact them . PEN managers thrive on encouraging patients and their caregivers to feel more confident in voicing concerns and communicating with their healthcare team , and ultimately empower them to become advocates for themselves and their loved ones .

As a caregiver and Care Partner Network Manager with PEN , I constantly search for practical information to use and pass along to those I support . I offer support by l istening and providing solutions to empower caregivers to improve their resi l ience . – Sherea

PEN NETWORK MANAGERS

DIAHANNA VALLENTINE

VOLLEEN WHITE

JEFF BUSHNELL

SHEREA CARY

CORA CONNOR

CARLY FLUMER

SUMMER GOLDEN

SAJJAD IQBAL

MARY LEER

HONORA MILLER

HEATHER SMITH

Joining PEN ’ s network of cancer managers has truly been inspiring . Although we ’ re al l across the world , conversing with them via emai l and Zoom chats and hearing their stories and thoughts of how to resonate with more patients is what feeds my soul . PEN is constantly growing , with their goal of representing al l cancers . For more information on how you can get involved , please contact Nykema , PEN ’ s Network Manager Coordinator , at kema @ powerfulpatients . org .

PEN - POWERED ACTIVITY GUIDE | PAGE 04

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