Uniting the Global OM Community The creation of an innovative online platform for the global OM community provides a central place where dispersed patients and their caregivers from around the world can access disease-specific resources and tools and share their knowledge and experiences. The VISION Registry The VISION Registry was developed in collaboration with patients, caregivers, researchers and clinicians and is a patient- reported, patient-powered online database designed for patients to share their experiences with OM. Patients fill in a series of surveys that capture their journeys with OM. Participants can complete the surveys at their own pace and are encouraged to update their records periodically. The Registry has ethical oversight by a central Institutional Review Board (IRB) and the highest standards of security and governance.
VISION Registry Data Report
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melanoma.org/VISIONplatform
How It Works It is easy to participate. All participants start by registering at visionregistry.org and completing a personal profile that includes selecting preferences for their involvement with VISION. They will then be directed to the VISION dashboard where the Registry surveys and all its tools and resources are housed.
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