“ It is astonishing to me that the secrets of this cancer are taking so long to unravel. Our very small numbers are certainly to blame so we should all summon up the courage to stand up and be counted. Let’s stand together, work together, and hope to live. Please put your heart into telling your story. Take a moment, however long it takes, to record the history of your disease in the VISION Registry. It will make a difference. ”
NIGEL DEACON, OM PATIENT AND VISION REGISTRY PARTICIPANT
Who Should Join? All OM patients and their caregivers are especially encouraged to participate as they are at the heart of VISION. In addition, all healthcare professionals who would like to experience VISION for themselves are welcome to register as a collaborator. Finally, researchers who are interested in utilizing the data can join as a collaborator and request to have de-identified reports shared with them. All participation is welcome and entirely voluntary.
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