The Elizabeth Hospice Palliative Reference Cards

SIGNS & SYMPTOMS CLOSE TO TIME OF DEATH OBSERVATIONS OF HOSPICE NURSES

MONTHS NOT WEEKS

WEEKS NOT MONTHS

DAYS NOT WEEKS

NEXT FEW DAYS

TODAY OR TOMORROW

PSYCHOLOGICAL SIGNS & SYMPTOMS

 Anxiety re: unfinished business, distancing,  expression of anger / feelings Information-seeking, e.g., How am I doing? What can I expect?, speaks of death

 Apprehension,  fear,  peacefulness

Maintains control, sense of humor, anger

 Peacefulness, fear of being alone

Peacefulness, fear of being alone

EMOTIONS

Wants to die, acceptance, saying goodbyes, family wondering ( asking ) ‘how long’ in order to pace themselves

Information-seeking, denial, will to live, refers to future, concern re: taking medications

Wants to die, intuitive, “I’m dying,” reassuring others

FACING REALITY

Acceptance, goodbyes

SOCIAL MARKERS INTERACTIONS

 Withdrawal, especially from close family

Inability or unwillingness to express self

Normal

Withdrawal,  outside interests

 Withdrawal

Closure of affairs, decisions re: Rx, e.g., food, hydration, deciding who to see

Stops unnecessary medications & treatments

 Decision-making, very definite wishes

Putting affairs in order

Unable to make decisions

SPIRITUAL MARKERS

Final funeral arrangements, dreams of dead / spiritual figures

Dreams of dead / spiritual figures

May see people who are dead

Plans funeral

FAMILY MARKERS

Information-seeking: “how long,” report changes, anxiety about being able to see death through, give patient permission to die

Family report patient’s acceptance / denial / anger

Instinct, statements by significant other / family re: dying

Ready for patient to die ( may feel guilt ), burnout

Give patient permission to die / let go

39 NB: These Reference Cards do not replace careful clinical judgment specific to each patient / family situation. PCIC: Palliative Care Interdisciplinary Curriculum is a collaborative effort of OhioHealth, The Ohio State University Wexner Medical Center, and Nationwide Children’s Hospital in Columbus, Ohio, USA, and other contributors. Permission to reproduce any or all of these PCIC Reference Cards is granted for non-commercial educational purposes only, provided that the attribution statement and copyright are displayed. To reproduce for all other purposes, contact Frank D. Ferris at info@pallmed.us. Copyright © Frank D Ferris 2013-2024. All rights reserved. V14.1, 2024 Adapted from “Markers noted by Home Hospice Nurses Related to Time Remaining in the Dying Process,” Master’s Thesis of Carol McCrann McShane RN, MS, Creighton University Lincoln NE, 1991. Used with Permission

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