Summit Program 2024

Detailed Program Description of In-Person Advocacy Summit February 25 - 27 in Washington D.C.

2024

PROGRAM FEBRUARY 25–27, 2024 The Westin Alexandria, VA

Thank You to Our Sponsors for Making the ZERO Prostate Cancer Summit Possible!

PREMIER SPONSOR:

PLATINUM SPONSORS:

GOLD SPONSORS:

SILVER SPONSORS:

BRONZE SPONSORS:

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Dear ZERO Summit Attendees,

Welcome to the 2024 ZERO Prostate Cancer Advocacy Summit! I’m thrilled to be here alongside all of you passionate advocates as we come together to advance our mission to end prostate cancer for all who are impacted. With prostate cancer diagnoses on the rise, your voices are needed more than ever. People at risk, fellow prostate cancer patients, and their families and loved ones are depending on us to be bolder and make an even bigger impact. In 2024, an estimated 299,010 men will be diagnosed, and 35,250 will die from the disease. Additionally, this disease continues to plague our Black fathers, brothers, family, and friends at higher rates, with Black men being nearly twice as likely to be diagnosed and die from prostate cancer. You and I know these statistics are unacceptable. Breaking down barriers to screening is critical in addressing health inequities and this is our top priority across all our meetings on Capitol Hill this week. We need to eliminate out-of-pocket screening costs for men who are at the highest risk of prostate cancer. With new momentum for the PSA for HIM Act, this could be one of the most important years for our cause to make early detection more accessible for all, especially those who need it most.

Thank you for your leadership in sharing your story and being an important part of our advocacy efforts to extend and save lives. I have no doubt with your help, our voices will be louder and stronger to make prostate cancer a nationwide priority together. With gratitude,

Courtney Bugler President and CEO courtney@zerocancer.org

SHARE YOUR PHOTOS from the ZERO Summit on social media using #ZEROSummit2024

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AGENDA

Monday, February 26 All education and advocacy training sessions take place in Edison A–D.

7:00 a.m. – 8:30 a.m. Breakfast 8:30 a.m. – 9:00 a.m. Welcome Ali Manson, MPH, ZERO Courtney Bugler, ZERO CEO 9:00 a.m. – 9:45 a.m. Update from the Prostate Cancer Research Program Mike Hall 9:45 a.m. – 10:00 a.m. PCRP Appropriations Request Training Ali Manson, MPH, ZERO Susan Sweat 10:00 a.m. – 10:30 a.m. Break 10:30 a.m. – 11:00 a.m. Survivorship: Living Beyond a Prostate Cancer Diagnosis Alicia Morgans, MD 11:00 a.m. – 11:30 a.m. CDC Appropriations Request Training Ali Manson, MPH, ZERO Susan Sweat 11:30 a.m. – 1:30 p.m. Lunch and State Group Networking

1:30 p.m. – 2:30 p.m. Better Together: Health Equity Work Across the Prostate Cancer Community Courtney Bugler, ZERO CEO Adrian Backus, JD, MDiv Chuck Ryan, MD Bill Dahut, MD Shonta Chambers, MSW 2:30 p.m. – 2:45 p.m. PSA for HIM Act Request Training Ali Manson, MPH, ZERO Susan Sweat 2:45 p.m . – 3:15 p.m. Advanced Prostate Cancer Treatment Options Elisabeth Heath, MD 3:15 p.m. – 3:30 p.m. PC-CARE Act Request Training Ali Manson, MPH, ZERO Susan Sweat 3:30 p.m. – 3:45 p.m. Break 3:45 p.m. – 4:15 p.m. How to Hold a Hill Meeting Ali Manson, MPH, ZERO Susan Sweat 4:15 p.m. – 4:30 p.m. Break and Hill Meeting Schedule Distribution 4:30 p.m. – 5:30 p.m. Q&A and State Group Coordination 7:30 p.m. – 9:00 p.m. Sexual Health Ask the Expert Katherine Klos, MD

12:00 p.m. – 12:30 p.m. What’s Going on in D.C.? Stacy Rich Chris Hodgson 1:30 p.m. – 2:30 p.m. Break

Tuesday, February 28 ZERO’s Advocates attend scheduled meetings on Capitol Hill.

Please note that agenda items are subject to change.

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2024

THANK YOU TO OUR EXPERT SPEAKERS:

ADRIAN BACKUS, JD, MDIV Director of Church Partnerships and Community Outreach Prostate Health Education Network (PHEN) Adrian Backus has more than thirty years of experience as an executive in educational and religious institutions, international assistance programs, and industry. He currently serves as director for partnership development and outreach for the Prostate Health Education Network. Rev. Backus holds a B.A. in Political Science from the University of North Carolina at Chapel Hill, a Juris Doctorate from Howard University School of Law, and a Master of Divinity degree from Princeton Theological Seminary. Additionally, he served for 15 years as Princeton Theological Seminary’s first vice president for information technology. COURTNEY BUGLER President & CEO, ZERO Prostate Cancer Courtney Bugler is a trailblazing nonprofit executive with extensive experience in leading national health charities to advance program development, organizational infrastructure, fundraising, and advocacy. Throughout her career, Courtney has been passionate about driving systemic progress in public health to save lives. Courtney is a highly trained consumer advocate with more than fifteen years of expertise in cancer, healthy equity, chronic disease management, and public health communications. She’s lobbied on Capitol Hill for more than a billion dollars in funding toward the DOD’s Congressionally Directed Medical Research Program and has served as a consumer advocate research grant reviewer for that program. SHONTA CHAMBERS, MSW Executive Vice President, Health Equity Initiatives & Community Engagement, Patient Advocate Foundation Shonta Chambers is a seasoned non-profit executive and public health professional whose career spans more than 25 years of experience in chronic disease prevention, health promotion, community engagement, and women’s health. She is responsible for the development and execution of PAF’s national strategy to address health equity, with a specific focus on persons residing in low-income communities. Shonta drives program initiatives that respond to unaddressed social determinants of health and the social need gaps caused by them. As staff lead for PAF’s health equity work promoting person-centered care, she engages with community stakeholders to mitigate barriers to health care. WILLIAM L. DAHUT, MD Chief Scientific Officer, American Cancer Society, Inc. Dr. William L. Dahut is chief scientific officer of the American Cancer Society where he oversees the strategic direction of intramural and extramural research. Dr. Dahut manages all pieces of ACS’ Discovery Pillar, including surveillance and health equity science, population science, cancer screening guidelines, and extramural discovery science. He serves as the scientific voice of the organization, advises key discovery positions, and manages more than $400 million in research funding. Dr. Dahut guides efforts to enhance and focus ACS’ research program, concentrating priorities where they will be most effective and working with key partners and supporters to further progress.

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MICHAEL D. HALL, PH.D. Program Manager, Congressionally Directed Medical Research Programs, U.S. Army Medical Research & Development Command Dr. Michael Hall serves as the Program Manager for the Prostate Cancer Research Program where he leads the Integrated Program Team. He provides strategic oversight of the annual $110M PCRP appropriation to achieve the mission to fund research that will eliminate death and suffering from prostate cancer, and enhance the well-being of Service members, Veterans, and men and their families experiencing the impact of the disease. Dr. Hall holds a Ph.D. degree in Tumor Biology from the Lombardi Comprehensive Cancer Center at Georgetown University, and dual Bachelor’s degrees in Marine and Molecular Biology from the Florida Institute of Technology. ELISABETH HEATH, MD, FACP Barbara Ann Karmanos Cancer Institute | Wayne State University School of Medicine Dr. Heath is the Patricia C. and E. Jan Hartmann endowed chair in Prostate Cancer Research at the Barbara Ann Karmanos Cancer Institute, and professor of Oncology and Medicine at Wayne State University School of Medicine in Detroit, Michigan. Dr. Heath has more than 26 years of experience and is a leading patient advocate for the metro Detroit community. At the 2019 and 2020 ZERO Prostate Cancer Summits, she spoke about funding clinical trials and how that translates into better care for prostate cancer patients. CHRIS HODGSON Principal and Director, Cornerstone Government Affairs Prior to joining Cornerstone in March of 2021, Chris served as director of legislative affairs to Vice President Mike Pence. As the Vice President’s top liaison to Congress, Chris managed relationships with House and Senate leadership, congressional committees and caucuses, and members of Congress, while working to coordinate and execute efforts to achieve the Administration’s legislative priorities. Chris served in the Office of Majority Whip Steve Scalise (R-LA) from 2014 to 2017 as floor assistant and then deputy floor director. In his role as deputy floor director, Chris helped guide critical bills, such as healthcare reform, Trade Promotion Authority, and 21st Century Cures, through the legislative process and worked with Members and their staff to address policy concerns and promote their legislative priorities. KATHERINE KLOS, MD Dr. Katherine Klos is a board-certified urologist who has developed a practice focusing on pelvic floor dysfunction. Dr. Klos received her Bachelor of Science in Anthropology from the University of Notre Dame and her medical degree from the University of Alabama. She completed her urology training at George Washington University in Washington, D.C. Dr. Klos takes a compassionate, comprehensive, and integrative approach to her patients in order to achieve the best outcomes. She values taking time to establish a trusting and lasting doctor-patient relationship. ALI MANSON, MPH Vice President, Government Relations & Advocacy, ZERO Prostate Cancer Ali Manson is ZERO’s Vice President of Government Relations and Advocacy. She is an experienced government relations professional with expertise in health policy, and has a passion for health and wellness. Ali leads ZERO efforts to advocate for prostate cancer research funding and new treatments. In Ali’s previous role at the American Optometric Association (AOA), she took the concerns of eye doctors and patients to policymakers to demand change. Prior to AOA, she worked for Prevent Blindness as the Director of Government Affairs, leading policy efforts to improve vision health across the country.

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ALICIA MORGANS, MD, MPH Medical Director, Survivorship Program, Dana- Farber Cancer Institute Dr. Morgans is an associate professor at The Feinberg School of Medicine at Northwestern University. She specializes in the treatment of genitourinary malignancies, including cancers of the prostate, bladder, testis, and penis. Dr. Morgans’ research focus is on improving care and patient outcomes in advanced prostate cancer. Her research investigates the side effects of cancer treatment and treatment decision- making among men with advanced prostate cancer. She also has an interest in supporting clinical research of novel treatments for genitourinary malignancies. She serves as vice chair of ZERO’s Board of Directors and is the chair of its Medical Advisory Board. STACY RICH Principal and Director, Cornerstone Government Affairs With nearly 17 years of experience working in the Senate Democratic Leadership, Stacy Rich joined the Cornerstone team as a principal in January 2020 after serving as the leadership staff director for Sen. Patty Murray’s (D-WA) office. As a top aide to Murray, the third most senior Democrat in the U.S. Senate, Stacy was responsible for advising the Senator on legislative strategy, leadership planning items, Senate procedure, member priorities and outreach, and floor activity, while also supporting the Senator’s work as Ranking Member of the Senate Health, Education, Labor and Pensions (HELP) Committee and as second most senior Democratic member of the Senate Appropriations Committee, on which Sen. Murray serves as Ranking Member of the Subcommittee on Labor, Health and Human Services, and Education (Labor-HHS). CHARLES J. RYAN, MD Chief Executive Officer, Prostate Cancer Foundation Dr. Ryan is an internationally recognized genitourinary oncologist with expertise in the biology and treatment of advanced disease as well as the supportive care of all men with prostate cancer. He has served as the Director of the Hematology, Oncology and Transplantation Division in the Department of Medicine at the University of Minnesota, and Associate Director for Clinical Research in the NCI-designated Masonic Comprehensive Cancer Center. He’s published over 200 articles and chapters in leading medical journals, and is the author of The Virility Paradox: The Vast Influence of Testosterone on Our Bodies, Minds, and the World We Live In. SUSAN SWEAT Principal and Director, Cornerstone Government Affairs Susan Sweat is a Principal at Cornerstone Government Affairs in Washington, D.C. For a decade, she served as a senior staff member in both the U.S. House of Representatives and the U.S. Senate. Now, her work supports ZERO and other clients, placing a significant focus on research and funding strategies. Her portfolio and expertise cover health care, defense, and appropriations issues. She received her undergraduate degree from Mississippi College, and a graduate degree from Georgetown University.

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March 12-14

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