1 CONTACT YOUR HOSPICE TEAM BEFORE CALLING 911: 866.466.9734 • Please inform staff that you are calling about a hospice patient, and state whether there is an emergency. • Be sure to call us f irst before calling 911 or taking the patient to the hospital to avoid possible fees from the hospital.
TABLE OF CONTENTS
Understanding Hospice Care
Caring For The Caregiver Self-Care ...................................................33 Respite Care ............................................34 Caregiver Resources............................35 Advance Care Planning Patient Self-Determination Act.......36 Advance Directives Questions & Answers ................................................37 Paying For Care Questions and Answers ......................38 Medicare/Medicaid ..............................39 Private Insurance ..................................39 Hospice Benefit Guidelines ...............40
YOUR CARE TEAM MEMBERS RN Care Manager: ________________________________________________ Hospice Aide/Certified Nurse Aide: _________________________________ Social Worker: ___________________________________________________ Four Seasons Medical Provider: ____________________________________ Primary Medical Provider: _________________________________________ Music Therapist: __________________________________________________ Chaplain: ________________________________________________________ Volunteer: _______________________________________________________ Others: __________________________________________________________ A nurse is available 24 hours a day, 7 days a week. Call 866.466.9734
What to Expect........................................ 3 Levels of Hospice Care ......................... 4 Frequently Asked Questions ............. 4 Your Care Team Hospice Care Team Members ...........5 Caring For The Patient Basic Care Bathing .......................................................7 Mouth Care & Cleaning .......................7 Skin Care.................................................... 8 Nutrition .................................................... 9 Safety Infection Prevention ...........................10 Medications ............................................12 Disposing of Medication....................13 High Risk Medications........................14 Oxygen Safety .......................................15 Emergencies & Disasters...................16 Fall Prevention ......................................17 Symptom Management Anxiety .....................................................18 Agitation & Restlessness...................19 Bleeding ...................................................20 Bowel & Bladder Issues......................21 Catheter Management.......................22 Nausea & Vomiting ..............................23 Pain ...........................................................24 Saliva & Secretions ..............................25 Seizures ....................................................26 Trouble Breathing ................................27 Traveling ...................................................28 As Care Needs Increase Levels of Care..........................................29 Elizabeth House .....................................30 Final Days Process of Dying ....................................31 The Timing of Death.............................32
What Do I Do Now? Necessary Tasks, Duties and
Checklists .................................................41 Legal Tasks, Deeds & Titles.....................42 Tax, Financial, & Personal Tasks.......43 Personal Information & Records.....44 Deeds & Document Locations..........45 Probate ......................................................46 Veterans’ Death Benefits ...................47 Additional Resources...........................48 Drug Take Back Locations ..................49 Grief Services Grief Support in Hospice Care .........50 Compass: Grief Support for Children & Teens.......................................... 50 Ways To Remember Memorial Gifts ........................................ 51 Bricks & Pavers.......................................51 Four Seasons Mission, Vision, and Values ...............52 Commitments to our Community...53 Please Note: Policies & Procedures are now in a separate publication which is given out at the same time as this GUIDE. If you need an additional copy, please let your care team know. You may also access it online by visiting FourSeasonsCare.org/ policy-guide.
CAHPS FAMILY SATISFACTION SURVEY
Your feedback is important to us. Four Seasons Hospice would like to encourage all the families we serve to complete the Family Satisfaction Survey (otherwise known as CAHPS, the Consumer Assessment of Healthcare Pro- viders and Systems). This survey, which is sent after a death to the most involved person in a patient’s hospice care, is a tool provided by the Centers for Medicare & Med- icaid Services. It measures the quality of care you and your loved one received from Four Seasons Hospice. By sharing your thoughts and feelings about your experi- ence at Four Seasons, you can help us improve the care we provide to our patients and families.
HOSPICE CLINICAL LEADERSHIP
Dr. Ruth Thomson DO, MBA, HMDC, FAAHPM, FACOI Chief Medical Officer
Rikki Hooper MBA, MLAS, MSN, FNP, ACHPN, NE-BC, FPCN, CLE Chief Clinical Operations Officer
Alethea Bivens RN, CHPN, GERO-BC, CLE
Dr. Brittany Matney MD
Vice President of Hospice Nursing Services
Assistant Hospice Medical Director
866.466.9734 • FourSeasonsCare.org
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