Prader-Willi Syndrome
From Restriction to Possibility: Lydia’s Journey to Independence and Wellbeing
Background
Lydia is 28 and has Prader-Willi syndrome (PWS), ADHD, autism, severe IBS and anxiety. She moved into a Consensus residential specialist service in October 2024. At the time, her health and wellbeing were making it difficult for her to enjoy many of the things that mattered to her, including horse riding, and limiting opportunities to be active and involved in her community.
The Impact
What we did
Her support focused on education, informed choice, inclusion and building independence. Food planning is co- produced with Lydia, helping her develop knowledge, confidence and food security, while activities are shaped around her interests, goals and social connections. Strong, trust-based relationships, personalised activity planning and access to ADHD medication have helped Lydia make progress at a pace that works for her.
Today, Lydia is leading a full and active life. She volunteers in her local community, attends activities independently, plays football twice a week and works as a paid Expert by Experience, helping to deliver Oliver McGowan Mandatory Training to Consensus colleagues by sharing her lived experience and insights. She has also returned to horse riding, something she had long wanted to do. Alongside these achievements, Lydia has made significant progress towards her personal health and wellbeing goals, including a sustained reduction in weight of 13.94kg. She has grown in confidence and independence, developed new skills and relationships, and is enjoying greater choice, stability and participation in the life she wants to lead.
Consensus | Impact Report 2025/26 21
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