Individualized Respite Care Guide

References

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing. Autism New Jersey. (2010). Connecting with autism: A blueprint for lifetime support. Robbinsville, NJ: Author. Chan, J. B., & Sigafoos, J. (2000). A review of child and family characteristics related to the use of respite care in developmental disability services. Child & Youth Care Forum, 29, 27-37. Connecticut Lifespan Respite Coalition, Inc. (2010). Get creative about respite: What you need to know about me: An informational guide for families, caregivers and respite providers. Rocky Hill, CT: Author. Hare, D. J., Pratt, C., Burton, M., Bromley, J., & Emerson, E. (2004). The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8, 425-444. Hutton, A. M., & Caron, S. L. (2005). Experiences of families with children with autism in rural New England. Focus on Autism and other Developmental Disabilities, 20, 180-189. Jeon, Y., Brodaty, H., & Chesterson, J. (2005). Respite care for caregivers and people with severe mental illness: Literature review. Journal of Advanced Nursing, 49, 297-306. Lee, L., Harrington, R. A., Lewis, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147-1160. MacDonald, H., & Callery, P. (2003). Different meanings of respite: A study of parents, nurses and social workers caring for children with complex needs. Child: Care, Health & Development, 30, 279-288. Meltzer, L. J. (2008). Brief report: Sleep in parents of children with autism spectrum disorders. Journal of Pediatric Psychology, 33, 380-386. Murphy, C. M., & Verden, C. E. (2013). Supporting families of individuals with autism spectrum disorders: Developing a university- based respite care program. Journal of Positive Behavior Interventions, 15, 16-25. Relax. Take a break: A family guide to respite for children in Michigan. (2013, June 10). Retrieved from archrespite.org/consumer- information Seltzer, M. M., Greenberg, J. S., Hong, J., Smith, L. E., Almeida, D. M., Coe, C., & Stawski, R. S. (2010). Maternal cortisol levels and behavior problems in adolescents and adults with ASD. Journal of Autism and Developmental Disorders, 40, 457-469. Van Bourgondien, M. E., & Elgar, S. (1990). The relationship between existing residential services and the needs of autistic adults. Journal of Autism and Developmental Disorders, 20, 299-308. About Autism New Jersey Autism New Jersey is the largest statewide network of parents and professionals dedicated to improving the lives of individuals with autism spectrum disorders. Self-advocates, their families, the professionals who work with them, government officials, the media, and concerned state residents all turn to Autism New Jersey for information, compassionate support, and training. Our public policy work in Trenton, annual conference, and information line (800.4.AUTISM) are just a few of the ways we make a difference for New Jersey’s autism community.

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