I. Patient Engagement The Patient Engagement section provides an overview of patients who are participating in VISION and those who are interested in additional research participation. This section informs the reader how many patients and their Legally Authorized Representatives (LARs) have consented to take part in VISION; how many participants have completed the Personal Profile and Preferences Survey, which provides the patient’s personal details and their preferences for engagement in VISION; and how many surveys have been completed by participants. This section also shows interest from participants to participate in VISION’s partner registry known as the Prospective Ocular Melanoma Natural History (OMNi), as well as other ocular melanoma (OM) clinical trials and research efforts.
VISION Participants the consent form 327 registered and signed
and preferences 174
completed personal profile
surveys 123
completed
Patients’ Preferences for Research Engagement
Would you like to be informed of research efforts related to OM?
Has the patient been enrolled in the collaborating academic registry study called Prospective Ocular Melanoma Natural History (OMNi)?
Would you like to be informed of clinical trials related to OM?
91% 5%
76%
YES
12%
2%
75%
NO
12%
7%
20%
UNSURE
2022 VISION Registry Data Report
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