I. Patient Engagement
Patients’ Preferences for Research Engagement (continued)
PATIENT VOICE “It is astonishing to me that the secrets of this cancer are taking so long to unravel. Our very small numbers are certainly to blame so we should all summon up the courage to stand up and be counted. Let’s stand together, work together and hope to live. Please put your heart into telling your story. Take a moment, however long it takes, to record the history of your disease in the VISION Registry. It will make a difference.” — VISION Participant in Canada
Would you be interested in being a patient representative for OM research initiatives, including this registry?
Would the patient be interested in participating in studies that focus on hereditary causes of OM?
82%
70%
7%
8%
11%
22%
2022 VISION Registry Data Report
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