S2650
RTT - Patient experience and quality of life
ESTRO 2026
Childhood, adolescent and Young Adult Cancer. Cork: National Cancer Registry Ireland;2023 Available at: https://www.ncri.ie/en/reports- publications/reports/cancer-trends-39-childhood- adolescent-and-young-adult-cancer Keywords: AYA, Hodgkin's Lymphoma, Long term follow up
Communication, Self-Management development Professional Roles & Relationships, and Rehabilitation and Recovery Post-Treatment (Fig 1).Participants described AYA HL care as fragmented, with designated AYA pathways variably implemented. Information during treatment focused on immediate clinical concerns—fertility preservation, acute side effects, and symptom management—often limiting discussions about longer-term recovery or late effects. Radiation oncology teams, however, emphasised these late effects earlier and more frequently than other professionals.Physiotherapy and occupational therapy input was described as “reactive” and “the tip of the iceberg” rather than routine, highlighting inequity in access. Information and support for self- management were often delayed until after treatment, when AYAs were “back to normal” and better positioned to engage. Variation existed across sites: some offered structured follow-up or end-of- treatment summaries, while others provided informal or ad hoc approaches.
Proffered Paper 576
Defining thresholds for clinical importance for the EORTC QLQ-PR25: improving interpretability of patient-reported outcomes in prostate cancer Samuel M Vorbach 1 , Micha J Pilz 2 , Juan I Arraras 3 , Renée Bultijnck 4 , Tara Chalk 5 , Jörg Andreas Müller 6 , John Ramage 7 , Heike Schmidt 6 , Lionne DF Venderbos 8 , Johannes Giesinger 2 1 Department of Radiation Oncology, Medical University of Innsbruck, Innsbruck, Austria. 2 University Hospital for Psychiatry II, Medical University of Innsbruck, Innsbruck, Austria. 3 Medical Oncology Department, Hospital Universitario de Navarra, Pamplona, Spain. 4 Department of Human Structure and Repair, Ghent University, Ghent, Belgium. 5 Supportive Oncology Research Team, Mount Vernon Cancer Centre, Northwood, United Kingdom. 6 University Clinic and Outpatient Clinic for Radiotherapy and Institute of Health and Nursing Science, Martin Luther University Halle-Wittenberg, Halle (Saale), Germany. 7 Department of Gastroenterology, Hampshire Hospitals NHS Foundation Trust, Basingstoke, United Kingdom. 8 Department of Urology, Erasmus University Medical Center Rotterdam, Rotterdam, Netherlands Purpose/Objective: The evaluation of health-related quality of life (HRQoL) is a cornerstone of clinical outcome assessment. Patient-reported outcomes (PROs), traditionally collected in clinical trials, are increasingly used in routine care, yet their interpretation remains challenging for healthcare professionals. The EORTC QLQ-PR25 assesses HRQoL in patients with prostate cancer (PCa). This study aimed to develop thresholds for clinical importance (TCIs) to facilitate interpretation of QLQ-PR25 scores in clinical practice and research. Material/Methods: Patients with PCa were recruited from Austria, Spain, Belgium, the United Kingdom, Germany, and the Netherlands. They completed the QLQ-PR25 and a questionnaire with three anchor items addressing limitations in daily life, need for help, and worries of the patient or partner/family1. Anchor items were rated on a 4-point Likert scale. Patients were categorized as positive cases (i.e., having a clinically important symptom/problem) if they selected “quite a
Conclusion: AYA HL care in Ireland is evolving, but inconsistency in service provision and information timing persists. Given the positive prognosis, structured post- treatment information and follow-up resources may better support self-management and mitigate late effects. Enhancing allied health involvement and ensuring adequate and timely information is provided are key opportunities to strengthen survivorship care. References: National Cancer Registry Ireland. Cancer Trends 39 -
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