S1486
Interdisciplinary - Patient involvement
ESTRO 2026
Oliveira 11 , Jennifer Steinmetz 8 , Kaori Tane 14 , Paula Tur 15 , Edward Chow 1,2 , Henry C Y Wong 16 1 Department of Radiation Oncology, Odette Cancer Centre, Toronto, Canada. 2 Department of Radiation Oncology, University of Toronto, Toronto, Canada. 3 Department of Radiation Oncology, National University Cancer Institute, Singapore, Singapore. 4 Department of Medicine, Yong Loo Lin School of Medicine, Singapore, Singapore. 5 Department of Clinical Oncology, The Christie NHS Foundation Trust, Manchester, United Kingdom. 6 Division of Cancer Sciences, The University of Manchester, Manchester, United Kingdom. 7 Medical Oncology Department, Hospital Universitario de Navarra, Pamplona, Spain. 8 Breast Unit, Helios University Hospital, Witten, Germany. 9 Radiotherapy Unit, 2nd Department of Radiology, ATTIKON University Hospital, Athens, Greece. 10 Department of Breast Surgery, Kansai Medical University Hospital, Hirakata, Japan. 11 Department of Radiation Oncology, Hospital Sírio- Libanês, São Paulo, Brazil. 12 Postgraduate Program, Department of Radiology and Oncology, Faculdade de Medicina da Universidade de São Paulo, São Paulo, Brazil. 13 Department of Radiology, The University of Tokyo Hospital, Tokyo, Japan. 14 Department of Breast Surgery, Hyogo Cancer Center, Hyogo, Japan. 15 Faculty of Science, Agriculture and Engineering, Newcastle University, Newcastle-upon-Tyne, United Kingdom. 16 Department of Oncology, Princess Margaret Hospital, Hong Kong S.A.R., China Purpose/Objective: Ductal carcinoma in situ (DCIS), unlike invasive breast cancer, is confined to the breast and does not cause regional or distant metastases. Existing generic and breast cancer-specific quality of life (QoL) assessment tools may not fully capture issues specific to individuals with DCIS. As part of an EORTC Quality of Life Group (QLG) study, healthcare professionals (HCPs) and patients were interviewed to rate the relevance of potential DCIS-specific QoL issues. This study aims to compare and evaluate the top-10 most important issues ranked by HCPs and patients. Material/Methods: Forty-two HCPs and ninety-two patients were recruited for semi-structured interviews. A list of 16 QoL issues was developed based on a comprehensive systematic literature review. HCPs and patients rated the issues on a scale of 1 to 4 based on relevance to DCIS (1 = not at all relevant, 4 = very much relevant), and ranked the top-10 most important items. Individual top-10 item rankings were converted to numerical scores (rank 1 = score of 10 and rank 10 = score of 1). Scores were added to calculate overall top-10 highest-ranked items. Prioritization of DCIS-specific QoL issues was also evaluated using top-10 frequency (the number of times an item appeared in an individual’s top-10 list),
and HCP and patient top-10 rankings were compared using Δrank (HCP − patient). Results: Nine items in the top-10 were the same between HCPs and patients: “psychological distress”, “concerns about treatment side effects”, “worry about recurrence/progression”, “uncertainty about diagnosis”, “difficulty in treatment decision-making”, “confusion about terminology”, “minimizing fear", “lack of information”, and “concern about treatment delays” (Table 1). Both HCPs and patients ranked “psychological distress”, “worry about recurrence/progression”, and “concern about treatment side effects” as the top-3 items in terms of total scores and frequency. Overall, HCPs tended to rank items that included the terms “concern” or “worry” higher than patients. Meanwhile, patients tended to rank items related to lack of awareness/communication higher than HCPs. Across both ranking methods, Δrank did not exceed 5, demonstrating high agreement between HCP and
patient ratings.
Conclusion: There was a high degree of concordance between HCP and patient prioritization of DCIS-specific QoL concerns. These findings provide key preliminary evidence to guide the development of a comprehensive, DCIS-specific QoL questionnaire, ensuring that both professional and patient perspectives are adequately represented. Keywords: Ductal carcinoma in situ, EORTC, HRQoL
Proffered Paper 4240 Patient-centred development of arms-up supports, for upright radiotherapy of the thorax
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