Pre-reading information pack Prior to the roundtable, BCNA circulated a pre-reading information pack, which provided attendees with information about the aims of the roundtable as well as the key barriers, enablers, opportunities and potential solutions shared with BCNA via the pre- roundtable stakeholder engagement. The pre-reading also acknowledged the significant work of many individuals and organisations to enhance cancer data capture, reporting and use, and provided and summarised a number of key projects related to cancer stage and recurrence data. Prior to the roundtable, Cancer Council Australia also kindly provided roundtable attendees with an embargoed copy of the draft report, Developing a National Strategy for Cancer - Developing a National Strategy for Cancer , which details a cancer data maturity model Cancer Council Australia has developed in consultation with key stakeholders. The high-quality data to be achieved under the model would enable health system performance assessment and benchmarking, evaluation of prevention, screening and early intervention programs, analysis of patterns and trends relating to demographic and disease characteristics, cancer outcomes and health system planning. BCNA considers Cancer Council Australia’s Data Maturity Model to be a key document, which
should underpin the approach to cancer data collection, collation, reporting, linkage and use developed as part of the new Australian Cancer Plan. The full pre-reading information pack is available from BCNA upon request. Pre-roundtable survey BCNA conducted a pre-roundtable survey with stakeholders who would be attending the roundtable. Attendees were asked to rank the top barriers and challenges across the areas of (1) governance, policy and legislation, (2) data, processes and linkage, and (3) resources and technology. Attendees were also asked to rank the most significant enablers and opportunities. Responses were compared using a weighted average. The survey also asked about key areas of investment that should be prioritised to progress national stage and recurrence data, with attendees asked to allocate a hypothetical $100 across a range of areas, such as existing cancer registry infrastructure, new technology and the workforce available to hospitals/health services to submit cancer notifications. The survey tool is provided in Appendix B. In total, 19 attendees completed the survey, representing a range of perspectives. Key findings were presented at the roundtable and are discussed in this report.
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National Roundtable Report
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