Table 2: Recommendations prioritised during the roundtable
Prioritised recommendations
0 1 2 3 4 5 6 7 8 9 10 Years
Derive metastasis data from existing and linked registry data (Definition to be guided by AACR stage at diagnosis). Resource smaller or less resourced registries to achieve minimum standards. Link data sets nationally and fund ongoing use. Data sets to be included: cancer registry data, MBS, PBS, inpatient and Cat-Link. Aim for 100% of breast cancer patients discussed in multidisciplinary meetings and data inputted in standardised software and available to registries/users. For PBCR that do not have access, establish linkages between state and territory cancer registries and MBS, PBS and inpatient data sets, with resourcing provided for unique state and territory needs. Develop a national cancer data strategy and framework. Fund and mandate electronic reporting of all cancer registries, including necessary upgrades of cancer registry infrastructure. Develop and use agreed data indicators for accountability. Apply minimum data sets to electronic medical record systems (structured reporting) and applied to public and private systems. Establish a national legislative authority with responsibility and oversight of minimum data sets. Fund validity testing to provide strengthened evidence regarding health data linkages identifying cancer recurrence. Mandate registry minimum data sets to include cancer stage and recurrence.
November 2023
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