Appendix B: Pre-roundtable survey instrument Survey Questions Question 1: Which of the following best describes the central perspective you will bring to the roundtable? • Federal, state or territory government
• Population-based cancer registry representative • Representative of a clinical association or peak body • Non-profit • Breast cancer consumer • Research • Other Question 2:
At the national roundtable, one of the workshop sessions will involve a discussion of the key barriers and challenges to the routine collection/collation and reporting of breast cancer stage and recurrence data across all states and territories. Below are some of the key barriers and challenges reported to BCNA via our pre- roundtable stakeholder engagement. Please rank the top 5 barriers/challenges in order of significance? (1 = the most significant barrier/challenge). The barriers/challenges below have not been listed in any particular order. Policy, governance, and legislation 1. Insufficient prioritisation of cancer stage and recurrence data collection/collation and reporting by policymakers 2. Complexities regarding Commonwealth and state/territory health data governance and data custodianship arrangements 3. Concerns about data security and privacy 4. Differing state and territory legislative arrangements regarding cancer notification requirements
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National Roundtable Report
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