Advocacy
Hill Day, March 9–11, 2019
OVER 100
93
Meetings with lawmakers
Registered attendees
www.mrfadvocacy.com
l On January 27, 2020, in partnership with the FDA, hosted the first ever Patient-Led Ocular Melanoma Listening Session. 11 ocular melanoma patients advocates spoke, along with Dr. Richard Carvajal, Columbia University Department of Medicine.
Partners in advocacy featured in program
OVER 25
PARTNERSHIPS
l Created new partnership with the National Organization for Rare Disorders (NORD). – Took part in NORD’s #RareCancerDay on October 1, 2019.
l Expanded partnerships with organizations including American Cancer Society Cancer Action Network (ACS CAN), Melanoma Research Alliance and the National Council for Skin Cancer Prevention (NCSCP).
The 2019 meeting of the Global Coalition for Melanoma Patient Advocacy took place in Salt Lake City, Utah, USA.
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