CURE OM RARE SUBTYPES
Launched the Ocular Melanoma Treatment Center Collaborative Coalition
CURE OM HOSTED: 8TH ANNUAL EYES ON A CURE: PATIENT AND CAREGIVER SYMPOSIUM April 5–7, 2019
l Eight interdisciplinary medical centers and academic institutions dedicated to bringing patients the most up-to-date information, and to sharing the latest research and best practices in OM treatment and psycho-social developments. l Two meetings in 2019 with presentations including: – Ocular Melanoma: A Psycho-Social Approach – Clinical Trials Overview
“I am so grateful for the thoughtful preparation that went into the weekend, and the professionalism and compassion demonstrated by all who presented. Thank you!”
“I loved
the loving and caring atmosphere! Everyone is so caring.”
Awareness Campaigns:
l I PATCH FOR
l RARE DISEASE DAY
l #EYEGETDILATED – The campaign reached 52,975 people on social media
Comments from attendees
Ocular Melanoma Virtual Support Group Hosted 12 Meetings in 2019
“Dr. Eschelman took very complex treatments and presented them in a manner that was easy for patients to understand.”
l Hosted in partnership with Thomas Jefferson University Oncology Social Work Program
l Groups available for primary OM, metastatic OM and OM caregivers
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