GUARDIANSHIP COMMITTEE COLLABORATES WITH STAFF TO SUPPORT INDIVIDUAL
THE ARC ONTARIO SELF-ADVOCACY MEETING
This spring, Robert had surgeries that required him to spend several months in a rehabilitation facility. The Arc Jefferson – St. Lawrence’s Guardianship Committee supports Robert with healthcare decision- making, and they assisted him during
The Arc Ontario's Speak Up, Speak Out Self-Advocacy group convened at the Main Facility's Pathways Area for a dynamic meeting that inspired and motivated participants. The highlight of the gathering was the guest speakers:
Susan O'Hearn, SANYS Regional Coordinator; Josh Derrick, Co-Chair of Arc Alliance's Self- Advocacy Group; and Marilyn Stata, SANYS Board President and SANYS FLX Board Representative. Their presence added significant value to the event as they shared their insights about SANYS (Self-Advocacy Association of New York State) and Arc Alliance with individuals and staff who are passionate about joining or supporting The Arc Ontario's self-advocacy group. Susan, Josh, and Marilyn's presentation was informative and inspiring. They shed light on the importance of self-advocacy, and how individuals can become active advocates for their rights and the rights of others. Their passion for the cause was palpable and empowered everyone in attendance. Speak Up, Speak Out is poised to grow stronger with the knowledge and inspiration gained from this meeting. The organization can't wait to see the positive impact this group will continue to have in advocating for inclusivity, understanding, and respect for individuals with intellectual and developmental disabilities or other challenges in our community.
months of procedures and rehabilitation. The team worked with his care coordinators and staff to ensure Robert received the best medical care possible. The guardianship committee was on standby during Robert’s surgeries and truly stayed engaged. They made themselves available to assist at all hours of the day and night to give the necessary consents, which made a critical difference. While Robert was in a hospital over two hours away, the team at The Arc Jefferson–St. Lawrence visited daily to provide care and companionship. This coordinated effort from Robert’s house staff, clinicians, and his residential nurse meant that he was well cared for, comfortable, and happy throughout the ordeal. The nurse at Robert’s residence has been steadfast throughout his recovery and brings him to every appointment. She even attended an appointment with Robert while on vacation to maintain his continuity of care and relay treatment plans to the staff. After months of hard work, Robert was able to return to his house. He was welcomed home with a picnic held by his friends, roommates, and staff. Now that he is home, Robert is working towards completing therapy. Thanks to the love and support from the Guardianship Committee and his dedicated staff, Robert is doing wonderfully and gaining ground every day.
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