Hope Parkinson Newsletter

Learn more about our upcoming events, education opportunities, and support groups!

October - December 2023

Jingle Bell Jamborees Find Joy at Our Holiday Open Houses Join us in person at a trio of perfect parties that will warm your heart and put a twinkle in your eye. Don your jolliest holiday attire while we get in the spirit with seasonal music, fun games, and light refreshments! Plan to attend one or more of these events, held in our Hope Community Rooms from 10:00 - 11:30 am: • Friday, December 1 in Bonita Springs • Friday, December 8 in Cape Coral • Friday, December 15 in Fort Myers RSVP Instructions The more, the merrier - please invite your loved ones, your neighbors, and new friends. Let’s make these open houses a true celebration of community and togetherness! We kindly ask that you pre-register at least one week before the event. • Write to PDevents@HopeHCS.org or call 239-425-9886 • When leaving a message, please include: The names of everyone joining you Your phone number The date(s)/location(s) you plan to attend

For all events, please register in advance by emailing PDevents@HopeHCS.org

Until There’s a Cure, There’s a Community

About Our Program The Hope Parkinson Program is a community service provided by Hope Healthcare, a not-for-profit, 501c3 organization. We work closely with like-minded community groups to provide a network of resources for people affected by Parkinson’s disease and related movement disorders. Become a Member Thanks to generous community support, membership is available at no cost. Call us at 239-985-7727, or start your application online at HopeParkinson.org/Join. Support Our Charitable Mission Help us keep membership free of charge and support our special programming! You can make a tax-deductible gift to support our program at MoreHope.org/PD. Our Meeting Locations Hope Cape Coral Community Room 2430 Diplomat Pkwy. E. • Cape Coral, FL 33909 Hope Bonita Springs Community Room 27200 Imperial Pkwy. • Bonita, FL 34135 Hope HealthPark Community Room 9470 Healthpark Cir. • Fort Myers, FL 33908 Estero Recreation Center 9200 Corkscrew Palms Blvd. • Estero, FL 33928 Requires an access card; $10 lifetime membership Cape Coral WellWay 609 SE 13th Ct. • Cape Coral, FL 33990

PD Winter Break Alert Please mark your calendars in advance. There will be no Parkinson’s classes or events during our two winter breaks: November 22 - 24 December 22 - January 2

Ongoing Enrichment and Exercise Join us virtually or in-person to stay connected, stay active, and find support! Schedules and details will be provided upon registration. In-Person Enrichment Groups (Monthly) Cape Coral WellWay, 1st Wednesday Estero, 1st Monday HealthPark, 1st Tuesday Virtual Enrichment Groups (Monthly) Care Partners without PD Open Group for all members and family Ladies with PD In-Person Exercise Cape WellWay, Land Class, Mon/Wed. 1 pm Cape WellWay, Water Aerobics, Tues/Thurs 1 pm Estero, Mon/Wed 11 am HealthPark, Tues/Thurs 11 am Virtual Exercise Parkinson’s Exercise twice a week Mindfulness Meditation once a week In-Person Ladies with PD Lunch Bunch HealthPark, Friday, November 3 at 11 am Bring a brown bag lunch, drinks are provided

For all events, please register in advance by emailing PDevents@HopeHCS.org

Parkinson Fall Forum: Presented by Your Chance to Hear Directly from Parkinson’s Disease Experts Discover the latest breakthroughs in Parkinson’s research and advancements in clinical treatment. Our Fall Forum is your chance to hear from directly from experts about scientific developments and opportunities that may help you during your journey with PD. Topics include: Michael J. Fox Foundation: Breakthroughs in Parkinson’s Research Speaker: Gage McDonough, Associate Director of Advancement, Michael J. Fox Foundation Learn about the current state of the Parkinson’s clinical treatment pipeline, including the groundbreaking Parkinson’s Progression Markers Initiative (PPMI) Biomarkers study. Discover opportunities to participate in PD research and advocate for policy changes. Pre-hab versus Re-hab Speakers: Elena Rodriguez, LSVT Big-certified Physical Therapist and Zander Mondo, Speakout-certified Speech Language Pathologist, both with Lee Health Parkinson’s Rehabilitation Team Explore the significance of proactive measures as compared to traditional approaches. Early interventions and preventive strategies can be essential to optimizing well-being. Advancements in DBS Therapy Speaker: Dr. George Mandybur, Neurosurgeon, Lee Physician Group Discover the exciting advancements in Deep Brain Stimulation (DBS) therapy and how it may revolutionize symptom management for people with PD. This special event includes a boxed lunch and beverage service. Hope Parkinson Program members may attend at no charge, but seating is limited. Early RSVP’s are strongly recommended, and registration is required before Friday, October 27.

Friday, November 3, 2023 from 11:00 am - 2:00 pm Florida SouthWestern State College, Room U-102 RSVP to PDevents@HopeHCS.org or 239.425.9886

PD 101 for Beginners Finding Hope for Living Well with Parkinson’s Disease If you’re newly diagnosed with PD or a related movement disorder, join us to learn how to manage symptoms, slow disease progression, and optimize your quality of life. We’ll dive deeper into local and national resources before providing an interactive Q&A opportunity to explore all of your concerns. In-Person Friday, October 13 at 10:30 am Hope Cape Coral Community Room Virtual Friday, October 27 at 10:30 am Complementary Therapies for PD Presentation & Discussion Group As usual, our quarterly Empowerment Meeting will be an educational presentation followed by a breakout discussion group meeting. People with PD and care partners will meet separately to connect, encourage, and support each other. Join us to learn about complementary therapies – alternative approaches used alongside conventional medical treatments that may help improve your quality of life. These options are not intended to replace standard medical care but are often designed to help minimize symptoms, enhance mobility, or promote a sense of well-being. In-Person Friday, October 20 at 10:30 am Hope HealthPark Community Room 9470 HealthPark Circle Fort Myers 33908

Educational Event Hope for the Best, Plan for the Rest Learn why it’s important to plan ahead when you have PD, and discover several helpful tools that will help you navigate changes in your health care needs. We’ll discuss: • Free “Aware in Care” kits provided by the Parkinson’s Foundation that can improve your care and clinical outcomes if you’re unexpectedly admitted to a hospital or inpatient facility • The best places to find the latest and greatest updates on PD • What’s involved in participating in scientific research on better medications, treatments, and possible cures • How people with or without a PD diagnosis can participate in clinical studies or donate their brains to research • How – and when – you should seek help as your disease progresses • Using Five Wishes advance directive forms to provide guidance for your loved ones if you can no longer speak for yourself – making choices based on your personal, emotional, and spiritual preferences In-Person Friday, November 17 at 10:30 am Hope Cape Coral Community Room 2430 Diplomat Parkway E Cape Coral, FL 33909

For all events, please register in advance by emailing PDevents@HopeHCS.org

Caregiver Burnout Presentation and Q&A

Join presenter Stephanie Malally, MSW of the Lee Health Memory Care Clinic for a unique perspective on caregiver burnout. Stephanie’s work helps seniors as well as people with Alzheimer’s disease and related dementias. She enjoys providing support and resources for caregivers, their loved ones, and the community. This event will help you better understand: • What caregiver burnout looks like • How coping mechanisms may help improve quality of life for everyone • Self-care and why it’s important • Tools that can assist with your caregiving duties – helping prevent burnout RSVP at least one week in advance. A post- event discussion will follow the presentation. Live Viewing Monday, October 9 at 10:30 am Hope HealthPark Community Room C or Hope Cape Coral Community Room Virtual Monday, October 9 at 10:30 am

Dinner and a Movie Still: A Michael J. Fox Movie Attend our private viewing of the movie “Still” that follows the life of beloved actor and advocate Michael J. Fox! Explore his personal and professional triumphs and travails, and learn what happens when an incurable optimist confronts Parkinson’s disease, courtesy of Apple TV+. A boxed dinner will be provided, and there no cost to attend for members. Seating is limited, and you must RSVP in advance for one of the following options: IMPORTANT NOTE: These reservations will be handled by the Healthy Life Center. RSVP by phone to 239-468-0050 or by email to healthylifecenter@leehealth.org . In-Person Friday, November 10 at 3pm Cape Coral Hope Community Room In-Person Friday, November 17 at 3pm Coconut Point Healthy Life Center 23450 Via Coconut Point, Estero, FL 33928

Parkinson Foundation Symposium Tentative: Saturday, February 10

For all events, please register in advance by emailing PDevents@HopeHCS.org

Important Reminders Private Zoom Training Sessions Do you want to join our virtual classes, but you’re not sure how to use Zoom? This video conferencing tool allows you to talk and see others on your computer, tablet, or phone. It’s an easy way to connect to our classes from the comfort of your own home! Whether you’re a new user or need a quick refresher, we can schedule a private training to show you how easy it is to use Zoom videoconferencing. Please write to PDevents@HopeHCS.org with a few date/time options of your availability. Parkinson’s Exercise Disclaimers This program does not provide, nor is it a substitute for medical advice, diagnosis, or treatment. Never disregard professional medical advice or delay seeking it due to information shared by the Hope Parkinson Program. Always consult your physician or other healthcare professional before starting any new fitness program. If you experience faintness, dizziness, pain or shortness of breath at any time while exercising, stop immediately. Exercise at your own risk. If it hurts, don’t do it. If you are using a chair for seated exercise, use a sturdy side chair, not one with wheels. Remember to clear the area of any throw rugs or other tripping hazards. Judgment-Free Empowerment Groups Hope’s group meetings – whether in-person

Survey: Urban Poling

Exercise Option for PD Would you be interested in trying a new class with us? Pole walking benefits may include improved balance and posture, improved bilateral movement, and an increased motivation for healthy exercise. Call 239-425-9886 if you’re interested!

Parkinson’s Education Discover Our Library of Resources Tell us more about your current challenges and concerns, and we will customize educational materials just for you. NOTE: Information shared by the Hope Parkinson Program is not intended to replace the medical care or treatment provided by your health care team. Unlock the Secrets to Becoming a Better PD Care Partner : Take free, online courses from the Parkinson’s Foundation at your own pace - simply visit bit.ly/PDcarepartner to get started. Go Beyond Hope Parkinson for Even More

Exercise Options : Join Ping Pong for PD at the Estero Recration Center. Please contact Coach Purvi directly at 239-272-8941 or tabletennistogether@gmail.com . There are additional programs at the Bonita Springs YMCA or local Rock Steady certified gyms - just ask us for details. For all events, please register in advance by emailing PDevents@HopeHCS.org or virtual – are confidential and judgment- free zones. Our goal is to provide a space for all participants to foster empathy and understanding. We welcome everyone who respects the privacy and opinions of other group members.

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