Hope Parkinson Newsletter

October - November - December 2020

In This Issue Fall Forum Details Holiday Celebration New Boxing Class Mindfulness Series Golf Fore Hope

Managing the Tough Stuff and Difficult Emotions

Connect with the people in your life. Cherish and improve relationships with friends, neighbors, or coworkers. Nurture a Hopeful Spirit. Hope helps us face unpredictability. Explore your values like faith, music, yoga, art, or spending time outdoors. Use your inner resources like humor or willpower. Finally, make each day count by focusing on the deeper meaning of your life. Reach out to help others. Don’t underestimate the impact you make on the world!

A Parkinson’s diagnosis may come months or years after symptoms first appear. During the wait, anxiety and fear of the unknown can upset the balance of your life. After diagnosis, the physical aspects are the most obvious target for treatments (medications, physical therapy, recommendations for diet and exercise), while your emotional wellbeing may be overlooked. Someone who is newly diagnosed may be dealing with sadness, anger, grief, or more anxiety. Their

loved ones may be experiencing the same emotions too. Left unchecked, these symptoms can lead to depression – a condition affecting up to half of all people with PD. What can you do to bring your physical and emotional health into balance? Talk to someone. Tell your doctor. He or she can recommend medical treatment. Consider individual or joint counseling – or both. Join a support group to share your experiences, make new friendships, and prevent isolation.

Register for Hope Parkinson Program Events • 239.425.9886 or PDevents@HopeHCS.org

Trusted News Finding the latest scientific information on Parkinson’s can be confusing and overwhelming. Doing a routine query on any search engine can bring up thousands of articles – you may find everything from clinical trials of new medications to the health benefits of singing. Fortunately, there are go-to sources for PD information that can make your search results reliable. Two well- respected foundations offer curated content to keep you up-to-date. The Michael J. Fox Foundation has been called “the most credible voice on Parkinson’s research in the world,” and the Parkinson’s Foundation has invested more than $340 million in both research and clinical care. Find the latest at: michaeljfox.org/research-news parkinson.org/research Both organizations also offer Other trustworthy websites may end in .edu or .org. These are typically not-for-profits. Beware of potential scams, and never sign up for research that is asking you to pay to participate. Always be skeptical of information on social media too. Consider the source – if it’s not a trusted foundation, legitimate organization, or accredited university, it may be inaccurate or even harmful. general education about PD and opportunities to participate in research.

From Our President and CEO For more than 40 years, people have relied on Hope to provide care and support for the people in our community. We continue our dedication to excellence – especially during this public health crisis. All current efforts to prevent coronavirus remain in place, and the leadership team remains committed to safety. Thank you for supporting Hope during this unprecedented journey.

Samira K. Beckwith, President and CEO of Hope Healthcare

Hope Parkinson Program Newsletter • October - November - December 2020

Fall Forum Register before October 23 to join this inspiring Zoom video conference. Friday, October 30 1 - 2:30 pm

Fall Forum: Managing Mood and Mind Changes

Register now for this interesting and informative online event featuring experts in the fields of neurology and psychology. Dr. Khadijah F. Shamseddine is a board certified neurologist who completed her education at the University of Florida and University of Minnesota. Her areas of specialization include movement disorders and deep brain stimulation. In 2016, she joined Neurology Specialists, a local practice that strives to provide personalized care with all the knowledge and techniques of modern neuroscience. At our Fall Forum, she will present medical management options for people with Parkinson’s.

Dr. Steven Cohen is the owner and director of The Center for Psychology. As a clinical psychologist, Dr. Cohen specializes in wellness, emotional expression, and personal relationships. He received his doctorate from the Georgia School of Professional Psychology and previously worked with the Children’s Hospital of Michigan, Wayne State University, and the National Health Service Corps. Dr. Cohen will be discussing helpful tools for self-management that you can use in your daily life. Our participants have told us that these educational opportunities with local experts are invaluable in managing symptoms of PD. We hope you can join us!

Dr. Khadijah F. Shamseddine Medical Management Options

Dr. Steven Cohen Self-Management Tools Register for Hope Parkinson Program Events • 239.425.9886 or PDevents@HopeHCS.org

Event Chairman Martin Haas pictured with Layne Callahan, age 7, at last year’s Golf Fore Hope tournament.

Make a Gift in Celebration of Golf Fore Hope

Dear Friends, Last year at this time, plans were well underway for the second annual Golf Fore Hope tournament at Magnolia Landing to benefit the Hope Parkinson Program. With your help, we were able to raise an impressive total of $11,500! These vital funds allowed Hope to provide education, socialization, and exercise opportunities for hundreds of people here in Southwest Florida. After careful deliberation, we decided not to hold the tournament this fall to safeguard the health and wellbeing of our friends, many of whom are at high risk for complications from the novel coronavirus. We remain

hopeful for the future and will certainly begin planning this special event once again as soon as circumstances allow. During this difficult interim period, we hope you will continue your support of the Hope Parkinson Program. People living with Parkinson’s disease are coping with incredible challenges during the pandemic. Without exercise and socialization, PD symptoms will often worsen. Our goal is to reach out to every participant, to offer virtual exercise classes and support groups, and to provide a helpful place to find resources and advice for navigating this chronic illness. If you are able to help, please visit Donate.HopeHCS.org/PD to

make a gift directly to the Hope Parkinson Program. Please write Golf Fore Hope in the comments field. You can also call Darlene Grossman at 239-985-7758 or 239-850-5933 for other ways to donate to this special appeal. Thank you again for your support and understanding as we look forward to a brighter future ahead! Warm regards, Martin Haas Golf Fore Hope Event Chairman p.s. We’re excited to share that we’ve already raised over $300! Please be sure to make your gift before October 31, 2020 to join this effort.

Hope Parkinson Program Newsletter • October - November - December 2020

Helpful Communication Tips to Reconnect with Your Partner

Caring and Coping Book The Parkinson Foundation’s free Caring and Coping book will guide you through every step of the care partner journey. Written by clinical professionals in the fields of nursing, social work, and physical therapy, the book includes tip sheets, worksheets, and care partner stories. With nearly 200 pages of content, you will find a wealth of information inside. View a pdf copy at parkinson.org/pd-library/books/ caring-and-coping . To order a free copy by mail, email helpline@parkinson.org or call (800) 473-4636. PD and COVID In July, The Michael J. Fox Foundation reported early results from an online survey administered through Fox Insight. Over 7,000 people responded to questions about PD and COVID-19. Many people experienced new or worsening symptoms, reporting trouble with tremors, sleep, and anxiety. A majority reported problems accessing health care. You can see an infographic with detailed results at bit.ly/ mjfoxcovid. The goal of this research is to provide health care providers with more information about the special needs of people with PD during the pandemic.

Senior adults often find that communication gets more difficult over time because of common problems like hearing loss or cognitive changes. People with Parkinson’s disease have even more challenges. In fact, those with PD are a third more likely to experience conversation breakdowns because of speech changes, decreased facial expressions, anxiety, isolation, or other symptoms of PD. The person with PD may feel like he or she is struggling to keep up with the conversation. Care partners may feel disconnected – as though they no longer recognize the person who they Acknowledge that this can be difficult. Pick specific times to talk, and consider your medication schedule.

once found so engaging. Both may feel as though they are failing because they can’t make connections that used to come easily, but communication breakdowns are no one’s fault. Angela Roberts, PhD presented these tips at the 2018 Caregiver Summit. Discuss them with your loved one. Improving communication can restore your sense of identity and wellbeing, helping nurture your relationship into the future. Remember, these strategies won’t immediately solve every communication issue. To improve, both people should be willing to be kind, diligent, and intentional in working together. Turn off the TV. Eliminate distractions.

Be aware of body language too.

Don’t change topics quickly.

Avoid chatting when you’re tired.

Remain calm. Don’t raise your voice.

Allow more time for conversations.

Don’t give up – always keep trying.

You can still help! Go to foxinsight.org to register.

Sit face to face.

Register for Hope Parkinson Program Events • 239.425.9886 or PDevents@HopeHCS.org

Cape Coral on Friday, December 4 Fort Myers on Friday, December 11 RSVP one week in advance for your preferred time: 8-9 am -or- 9-10 am -or- 10-11 am

Celebrate with Carols, Cocoa, Cookies and Candy Canes Wear your festive holiday attire and be greeted by some of your favorite instructors and volunteers from the safety of your vehicle. Enjoy live holiday music and pet therapy dogs on parade! All guests will be asked to remain in their vehicles at all times; this is a drive-through event. New Rock Steady Boxing Classes Available Online Rock Steady Boxing is a non- contact fitness program designed

Fridays, first class on October 2 1:00 – 2:00 pm RSVP for Zoom link

include improvement in hand-eye coordination, speed, flexibility, balance, core strength, and agility. Hope Parkinson Program participants with PD or related movement disorders can join our class at no charge. Care partners are also welcome to participate as “corner men” – assisting for safety as needed. As always, speak with your doctor before you begin. Coach Erick Armstead will lead weekly Zoom classes with a combination of cardio, resistance, strength, and balance training.

for people with PD. In 2006, a young man wanted to challenge himself to fight back against his Parkinson’s disease symptoms. Working closely with his boxing trainer, he designed a modified regime that notably improved his health. He created a nonprofit to bring the program to others. Though it may seem surprising, the specialized Rock Steady Boxing fitness routine is proving to be a uniquely effective form of exercise for PD. Benefits

Erick Armstead Rock Steady Boxing Certified Coach

Hope Parkinson Program Newsletter • October - November - December 2020

Weekly Classes Stay active and connected through our live online classes. See the last page of the newsletter for details on how to register for these and all other Hope Parkinson events. Tai Chi Mondays at 3 pm Wednesdays at 2:30 pm Exercise Tuesdays at 11:30 am Thursdays at 11 am Laugh Club Fridays at 11 am Rock Steady Boxing Fridays at 1 pm Monthly Support Groups Our virtual support groups are available by phone or video. We offer each other understanding, empathy, and camaraderie throughout the journey. Open Group 3rd Thursdays at 1 pm Care Partners

Four Week Series on Mindfulness Wednesdays, October 14 through November 4 11:30 am - 12:30 pm RSVP for Zoom link

By now, you know that exercise is one of the cheapest, most effective medicines for slowing down the progression of Parkinson’s disease. Consider that mindfulness meditation is an exercise for your brain! Mindfulness is about increasing your awareness in the present moment without distracting thoughts about the past or future. When you practice mindfulness, you may become less overwhelmed by the world around you. The mental habits of mindfulness are available to everyone – it doesn’t take special skills, only your time and attention. Mindfulness has been scientifically proven to improve sleep, lower blood pressure, and reduce chronic

pain. People with PD may notice that it will boost feelings of control and resilience while reducing stress, anxiety, and depression. We hope you will be able to join us for a series of four weekly classes to learn how mindfulness can improve your quality of life and increase Morley, classes are available to participants and care partners at no charge. Rebecca is licensed therapist and counselor at Hope Healthcare who is excited to share the mindfulness practices that she has found helpful in her own life for the past six years. Class size is limited, so reserve your space as soon as possible, no later than October 7. your overall life satisfaction. Led by instructor Rebecca

2nd Thursdays at 1pm Ladies with PD 4th Fridays at 1 pm LaBelle Group 2nd Tuesdays at 1 pm

mind·ful·ness noun : A mental state achieved by focusing one’s awareness on the present moment, while calmly acknowledging and accepting one’s feelings, thoughts, and bodily sensations

Register for Hope Parkinson Program Events • 239.425.9886 or PDevents@HopeHCS.org

NON-PROFIT ORGANIZATION U.S. POSTAGE PAID MAILED IN AMERICA

PARKINSON PROGRAM

Hope Hospice & Community Services, Inc. 9470 HealthPark Circle Fort Myers, FL 33908

RSVP Email Send a Message PDevents@HopeHCS.org

RSVP Phone Line Leave a Voicemail 239.425.9886

Become a Member HopeParkinson.org/Join 239.985.7727

Register at least 3 days in advance unless otherwise specified. In your message, please include the name(s) of the event you wish to attend, the full name(s) of who will be participating, and a valid phone number. After you have created your reservation, you will only be called back if the class/event is full and spaces are no longer available. Contact us for help or a private practice session to learn how to use our safe, easy, and private Zoom videoconferencing tool. Consult your physician before starting any new exercise program. Exercise at your own risk. If it hurts, don’t do it. Ask about modifications. If you’re using a chair, it should not have wheels. Clear the area of throw rugs and tripping hazards. You must contact us before your first exercise class. The Hope Parkinson Program is a community service provided by Hope Healthcare, a not-for-profit, 501(c)(3) organization. Learn more at HopeParkinson.org or make a gift at Donate.HopeHCS.org/PD. Generous community support and funding from the United Way of Lee, Hendry, Glades, and Okeechobee help provide membership at no charge. Additional materials are available by request, including contact details for other PD organizations, printable handouts, links to YouTube videos, and other resources. Contact Program Coordinator Michelle Martin at Michelle.Martin@HopeHCS.org.

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