CONNECTIONS ISSUE 14 OUR MISSION. YOUR STORIES.
STRONGER TOGETHER
IN THIS ISSUE
A Message from CEO Erik Geizer CELEBRATING OUR DSPS
A Message From The CEO - 1-6
The Arc New York 2023 Fall Award Recipients - 7-9 The Arc New York 2023 Art Competition - 10,11
We recently celebrated Direct Support Professional Week. I want, once again, to thank each and every DSP for their essential work, and their impact on the lives of people they support. It is the mission of The Arc New York to “provide people with intellectual, developmental, and other disabilities the ordinary
The Resource Center Opens New Art House - 11
From The Archives... - 12
NYSARC Trust Services - 13,14
Stageworks Returns With “Almost to Oklahoma!” - 14
The Arc New York Guardianship Program - 15
Guardianship Committee Collaborates With Staff to Support Individual - 16 The Arc Ontario Holds Self-Advocacy Group Meeting - 16 Honoring DSPs Across New York State - 17-20 NADSP E-Badge Academy - 21-23 The Council on Quality & Leadership Achievements - 24 DSP Week Celebrations - 25,26 AHRC Nassau Accomplishments - 27 ACHIEVE Chosen to Participate in Federal Program- 27 Arc of Onondaga Holds Grand Opening - 28 AHRC Suffolk Re-Opens Lakeland Day Hab - 28 29th Annual Arc Race - 29 Dancing With The Arc - 29 Arc Herkimer Recognized For Inclusion on the Green - 30
and extraordinary opportunities of life.” Our DSPs are truly the foundation of that mission. Every day, every skill, every success, every opportunity is supported by a DSP. They are responsible for the health, wellbeing, growth and inclusion of people with I/DD. Their work is important. This issue of Connections highlights some of the amazing DSPs our Chapters are lucky to employ. I urge you to read about their impact. Most importantly, I urge you to advocate for our workforce with the same passion and commitment they bring to their work every day. The role of DSPs is deeply undervalued. The best way to honor them is to advocate for their recognition and compensation as skilled professionals. Read on for opportunities to advocate, and join the fight!
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A Message from CEO Erik Geizer (Continued)
ADVOCACY
Gearing Up For Budget Season
Permanently increase wages of Direct Support Professionals through a Direct Support Wage Enhancement (DSWE) Include a 3.2% Cost-of-Living Adjustment (COLA) to meet rising costs due to inflation achieved a great deal over the past several years, but we must continue the fight to ensure quality supports and services, inclusion and opportunity for New Yorkers with I/DD. Our goals for the 2024-25 Executive Budget are twofold. We are calling on state leaders to: Our budget campaign has begun, and we need your voice! Thanks to your ardent advocacy, we have We've launched a one-click campaign to inform the governor and other representatives of these budget requests. We urge you to add your voice! By participating, you will quickly send a letter to your elected representatives to tell them support for New Yorkers with I/DD must be a priority in this year's budget. We also encourage you to bring your voice directly to the Capitol halls to rally with our New York Disability Advocate (NYDA) partners in support of New Yorkers with I/DD. Join us Wednesday, November 15, at 11:00 am in the War Room on the 2nd floor of the NYS Capitol building. Our goal is to get 400-500 people there as a show of force and solidarity from across the state. Our voices are louder together. Make yours part of the call! Register for the rally here. Information on logistics, messaging for signs, and parking will be released in the near future. Registration is very important, as we are gauging interest for coordinated group transportation. Learn more about our goals and find resources to support your advocacy efforts in our Budget Advocacy toolkit.
In addition to our budget advocacy efforts in New York, we are urging Congress to support the bipartisan bill, "Recognizing the Role of Direct Support Professionals Act." DSPs are not designated with their own Standard Occupational Classification (SOC) by the Bureau of Labor Statistics (BLS). As a result, DSP wage and occupation data is not accurately captured. This diminishes the true impact of the workforce crisis and hinders opportunities for professional advancement, certifications, and the pursuit of a lifelong career. The bill recently passed the Senate Homeland Security and Government Affairs Committee with a unanimous vote. We've created a one-click campaign to quickly send a letter directly to congressional representatives to let them know their support of this bill is critical as we seek to get DSPs the recognition they deserve.
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A Message from CEO Erik Geizer (Continued)
HISTORIC EVENTS 33rd Anniversary of the ADA
State Timeline Exhibit
As part of the “Look Beyond My Developmental Disability” campaign, OPWDD and NYS Council on Developmental Disabilities (CDD) (formerly the Developmental Disabilities Planning Council), launched a timeline exhibit, which featured key historical events that affected New Yorkers with developmental disabilities. As part of the exhibit, the CDD also released a half-hour documentary, “The Path Forward: Remembering Willowbrook,” which shares the legacy of the Willowbrook State School and the reforms that resulted. The powerful exhibit was displayed throughout the summer, and the documentary can be viewed here.
Over the summer, I was invited to a celebration at the Governor’s Mansion to commemorate the 33rd anniversary of the Americans with Disabilities Act (ADA). The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public places. The purpose of the law is to make sure that people with disabilities have the same rights and opportunities as everyone else. The ADA provides civil rights protections for individuals with disabilities, similar to those granted to individuals on the basis of race, color, sex, national origin, age, and religion. Governor Kathy Hochul spoke about the importance of upholding the ADA. She also announced the state's new anti-stigma campaign, “Look Beyond My Developmental Disability.” The campaign was spurred by legislation Governor Hochul signed in 2022 directing the New York State Office for People With Developmental Disabilities to develop and implement a public awareness campaign that combats discrimination, stigma and stereotyping of people with developmental disabilities.
Pictured with Vicky Hiffa, Acting Executive Director for the Council on Developmental Disabilities (CDD)
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A Message from CEO Erik Geizer (Continued) CDD’S ADVOCACY INSTITUTE
i individualized services and advocacy for people with disabilities. We very much appreciate the partnership with CDD and look forward to continuing to build a strong coalition of advocates across New York state! This event was another effort to work towards our Strategic goal of being recognized as the state’s highest quality and largest provider of
CHAPTER PARTNERSHIPS
Philip Aydinian, Director of Governmental Affairs
On September 21, The New York State Council on Developmental Disabilities partnered with The Arc New York and New York Alliance for Inclusion and Innovation to present their first- ever Advocacy Institute. The event was a joint effort to provide opportunities to a diverse group of self-advocates across New York state who are new to advocacy or want to expand their advocacy skills. Director of Quality, Compliance & Chapter Relations & CDD Member Josh Christiana and Philip Aydinian, Director of Governmental Affairs, represented The Arc New York at this groundbreaking event. The day consisted of educational sessions by advocacy champions such as BJ Stasio and Max Donatelli, who shared their Art of Advocacy program. Attendees heard from family and self-advocates such as Katy Faivre and Chester Finn, and were taught essential skills by Serena Lowe during her “Advocacy Baseball” session. Attendees were also joined by New York State Assemblymember Angelo Santabarbara, who shared his experience advocating with legislators. Attendees were able to practice their new skills in an interactive advocacy session with Santabarbara.
Liberty ARC (Montgomery) and Schenectady ARC recently announced they are exploring the possibility of unifying the two agencies! Over the summer, the agencies sent out a joint letter to family members, people supported, and staff, noting that with the retirement of Kirk Lewis at the end of 2023, it is the right time to make the connection. Liberty and Schenectady have a long history of collaboration; a unification will leverage the strengths of these two respected organizations, allowing them to share their expertise for the benefit of the people they support and enhance programs and services in both counties. We are excited to see the growth that will result from these agencies working together!
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A Message from CEO Erik Geizer (Continued) CHAPTER EVENTS In August, we hosted The Arc New York Second Annual Golf Open at Arc Herkimer’s MV Golf & Event Center. We had a great time bringing our Chapters together for a day on the green. We also had the opportunity to learn about new adaptive golf carts that will allow wheelchair users to participate in the sport of golf! Congratulations to Warren, Washington & Albany Counties ARC (WWAARC) for winning this year's tournament!
I also had the opportunity to attend the annual Mountain Lake Services (Essex) Golf Classic at Ticonderoga Golf Course, where I met with agency leadership, supported individuals, and community members - who once again proved that we are STRONGER TOGETHER.
I met up with Ken Stall, CEO of Coarc (Columbia), to celebrate his 40th work anniversary during the agency's annual Palooza event in early September.
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A Message from CEO Erik Geizer (Continued) CHAPTER EVENTS
2023 FALL BOARD OF GOVENORS MEETING
In Septmber, I attended The Arc of Renselaer’s Annual Gala.
We are excited for the 2023 Fall Board of Governors Meeting on Friday, October 27, at the Crowne Plaza Hotel in Albany. The meeting is being held in person for the first time since 2019 - and we can’t wait to see everyone! This year, we have a special guest speaker, Christian Tasso. Christian is an Italian photographer whose work aims to combat stereotypes about disability around the world. With his ongoing project, "No One Excluded", Tasso has captured portraits of people with disabilities in 16 countries. His work presents the subjects' individual identities and stories through a collaborative process that promotes inclusion, celebrates diversity, and raises vital questions about representation. The projet was published in a limited-edition book in partnership with the European Union, and has been exhibited in many venues, including the Palais des Nations, the United Nations Headquarters in Geneva. We are thrilled to have him share his work, and his perspective on inclusion and representation around the world.
And I even rode a mechanical bull at The Arc Lexington’s (Schoharie, Fulton) Night Out western event! It has been a pleasure and an inspiration to visit our Chapters and celebrate the incredible work they do every day.
Christian Tasso
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THE ARC NEW YORK 2023 FALL AWARDS RECIPIENTS
The Arc New York Marc N. Brandt Exceptional Leadership Award
Named after the Organization’s outgoing President, this award is designed to highlight and celebrate individuals supported by their local Arc New York Chapter by recognizing their achievements and contributions made to their Chapter, community and peers. Nominees and recipients are individuals who not only use services provided by their local Chapter of The Arc New York, but also help to provide support to others in a manner that benefits other people with intellectual or developmental disabilities and their community. One award in the amount of $500, along with a commemorative personalized glass award is presented annually. All nominees receive $100 and a certificate of recognition. Daniel’s dedication to the achievement of organizational goals often results in his participation in collaborative projects, including several strategic planning workgroups and numerous initiatives at the Chapter. He encourages cooperative, open- minded thinking in other team members, empowering others. Dr. John Kowalczyk Outstanding Citizenship Award
The Arc New York Marc N. Brandt Exceptional Leadership Award offers Chapters the opportunity to recognize a mid to upper-management staff member or emerging leader who has demonstrated exceptional leadership ability and commitment and has positively affected the lives of people with intellectual and developmental disabilities and their families. As the Organization’s State Executive Director and prior executive leader of the Sullivan County Chapter, Marc N. Brandt provided more than four decades of unwavering guidance and leadership to the Organization. Under his leadership, Mr. Brandt oversaw significant transformation of programs and services that profoundly impacted the lives of thousands of people with intellectual and developmental disabilities and their families. His commitment was steadfast and uncompromised as he worked tirelessly to make communities across the state a better place for all its citizens. During his tenure, Mr. Brandt worked directly with families, volunteers, self-advocates, community organizations, service agencies and governmental leaders to effect much-needed change. He is a known and respected leader in the field across the nation who guided the growth of the Organization to become the largest, and perhaps strongest, family-based Organization serving people with intellectual and developmental disabilities and their families in New York State. One award in the amount of $1,000.00 is presented annually.
2023 Recipient Jimmy Getsch Liberty ARC
Jimmy is an exceptional community supporter and dedicated volunteer for the Office of Aging. He does grocery shopping,
2023 Recipient
medication pick up and food delivery for homebound seniors, and delivers over 300 copies of the Lifespan Newsletter throughout Montgomery County every month. He has incredible charisma, and the ability to make those he helps to feel safe and supported. Jimmy is very independent and likes to quietly go about his volunteering work. However, he is always excited to get involved in community events and to celebrate his peers as they are recognized for their involvement.
Daniel Werges, Managing Director of Community Services at The Arc Rockland Daniel has been with The Arc Rockland for over 10 years, and is deeply invested in both the success of the programs he supervises, and the success of the Organization as a whole.
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THE ARC NEW YORK 2023 FALL AWARDS RECIPIENTS
Thomas A. Maul Direct Support Professional Excellence Award
Joy Bookmiller, from the Arc GLOW (Genesee, Livingston, Orleans, Wyoming counties) Joy has been with her local Chapter for 30 years, and has been a DSP almost as long as the Elba Day Habilitation site program in Genesee
This award, in the amount of $2,500, is presented annually to four direct support professionals employed by a Chapter of The Arc New York. Through this award, The Arc New York recognizes individuals who consistently demonstrate excellence, creativity and commitment in providing supports to people with intellectual and developmental disabilities. Candidates have displayed an exemplary level of performance over the course of their employment, and shown commitment to improving the quality of life for people they support. All nominees are presented with a $250 check and certificate of recognition. This award is presented in honor of Thomas A. Maul, who during his tenure as OPWDD (formerly OMRDD) Commissioner from 1993 to 2006, addressed many of the long-standing issues that face The Arc New York and the people we serve. The Arc New York shared a major priority with the Comissioner—the true recognition of its workforce.
County has been in existence. Even after 30 years, Joy always arrives to work early and has maintained an exemplary attendance record. She starts the day with full intention to make it the best day possible for the individuals she supports. Joy mentors and leads by example. She never says, “That is not my job.” Joy considers all aspects of service provided at Elba Day Hab to be important, and that includes supporting new staff, just as she does the individuals she serves. Leasa Burch of The Arc Rensselaer County
Leasa has been with her local Chapter for five years. She coordinates provision of residential supports to the people at designated home sites
2023 Recipients
Mary Garvey of Mountain Lake Services, Essex County Mary has been with the organization for an impressive 32 years. Mary is the kind of person who takes initiative and makes sure that the needs of those she supports are met, and that their comfort and well-being are prioritized.
and supervises the team to ensure quality standards are met. Leasa demonstrates dedication and self-motivation through her constant desire to improve the lives of the people she supports. She will take the initiative to research something and bring it to her team in effort to be an advocate for the people she supports. Leasa pursued her LPN degree while working for The Arc, and is currently in the process of taking her boards and obtaining her licensure. Leasa is someone who is always seeking out learning opportunities for herself and her staff.
Mary is incredibly reliable and often volunteers to take the people she supports on outings and trips during her scheduled days off, and then follows that up by being at work for her scheduled time. She is a person that everyone can count on and will be there for others, always ensuring that the highest standards of care are provided.
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THE ARC NEW YORK 2023 FALL AWARDS RECIPIENTS
Ligia Ryan from The Arc Rockland Ligia will celebrate her 30th anniversary with The Arc Rockland in November 2023. Throughout her tenure, she has demonstrated a remarkable commitment to the well-being of individuals with intellectual and developmental disabilities.
Ted stands out as a leader. He is very involved in group meetings and helped to form the Incredible Voice bylaws. He regularly takes part in team building activities and plans events for the year. He loves to attend rallies and meet with local elected officials to discuss important issues pertaining to self-advocacy. Upon his return, advises his peers of what he learned and what changes are coming to the region. Volunteer of the Year This award provides the opportunity for The Arc New York to honor and recognize a volunteer who has shown continued dedication, exemplary service, and advocacy on behalf of individuals with intellectual and developmental disabilities. 2023 Recipient
Ligia is incredibly self-motivated and advocates strongly for the individuals she supports. Ligia is always moving and never stands still. Ligia creates a safe and comfortable environment for the individuals in her care. Her philosophy of working is to enrich the world of the individuals she works with and to develop a relationship with them so they can trust her. She is an avid professional and a fierce advocate for the individuals she supports. Self-Advocate of the Year This award is designed to highlight, recognize and celebrate the achievements and contributions made by The Arc New York’s self-advocates. Nominees and recipients are individuals who not only use services of The Arc New York but also help to shape those services in a manner that benefits other people with intellectual or developmental disabilities. One award in the amount of $500, along with a commemorative personalized glass award, is presented annually. All nominees receive $100 and a certificate of recognition. 2023 Recipient
David Irish, The Arc of Monroe Primary Board
of Governor, VP Western Region
Dave can easily be described as one of the finest professionals a person will ever know. He is collaborative by
nature, practical, candid, inclusive,
humble, and passionate about advocating for the individuals with intellectual and developmental disabilities that we as an Organization are committed to serve. He dedicates much of his time to statewide endeavors, as well as those of the Western Region and his Chapter. Dave leverages his leadership skills to ensure meetings are focused, and outcome oriented, while also ensuring that all voices are heard, and working to reach consensus almost all of the time. He is vocal in Executive Committee meetings, balanced in his opinions and takes input from others in a sensitive & thoughtful manner.
Ted Perry, The Arc Allegany-Steuben
Ted is involved in several boards, committees and other decision-making groups. He is the President of The Arc Allegany-
Steuben’s self-advocacy group, Incredible Voice, a board member of SANYS (Self-Advocacy Association of New York State) representing the Western Finger Lakes Region, and a member of the Collaborative of New York’s Self- Advocacy Team.
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THE ARC NEW YORK 2023 ART COMPETITION
Alternative Mediums & Subjects Category 1st Place: Andrea Kwasek Monkeying Around ACHIEVE
This year’s Art Competition was held virtually on Thursday, September 28. All artwork entered in the competition was displayed in a video presentation shown during the event. We were thrilled to see a record number of entries in this year’s competition! Over 160 artists from Chapters across the state submitted the piece of their choice and selected the category they wished to enter. All entrants were judged in one of three categories: Nature, Abstract, or Alternative Mediums or Subjects. We are proud to share this year’s Art Competition winners with you here! The recipients are . . .
Nature Category 1st Place: Rachel Paz Butterfly The Arc Lexington
2nd Place: Carol Rosenbaum Daydreaming ACHIEVE
2nd Place: Candice McClendon Titled: Bead & Wire Holder Intandem
3rd Place: Donald VanEtten Honeycomb The Arc Lexington
3rd Place: Lydia Hood Amazing Day ACHIEVE
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THE RESOURCE CENTER OPENS NEW ART HOUSE
2023 ART COMPETITION
Abstract Category
1st Place: Matthew Feldman Season’s Breeze ACHIEVE
The Resource Center (Chautauqua) recently held a ribbon cutting to formally unveil the KeyBank Art House at Edgewater, the new home of their art program for people with disabilities. The Art House, located on Eighth Street in Jamestown, was created from an old garage. The 1,700 square- foot structure will offer a variety of classes, including painting, drawing, mixed media and ceramics. A gallery space will give class participants a forum to showcase their work.
2nd Place: Emma Del Pozzo Landscape Abstracted Coarc
“We are excited to formally unveil the KeyBank Art House at Edgewater,” said Denise Jones, The Resource Center’s Chief Executive Officer. “Today represents the culmination of our long-held dream to give more people with disabilities the opportunity to express themselves through art. We are grateful to KeyBank and First Niagara Foundation, Empire State Development, the City of Jamestown, and everyone else who helped make this facility possible. We can’t wait to see the amazing art that will be created in this beautiful space, and we look forward to partnering with other local entities to expand access to the arts.” Major funding for the project came from KeyBank and First Niagara Foundation, which jointly provided $225,000. Empire State Development will provide a Regional Council Capital Fund grant of up to $134,440.
3rd Place: Christopher Lynch Space Earth AHRC Nassau
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FROM THE ARCHIVES... During September, we celebrate National Direct Support Professional Recognition Week. This year, we wanted to pay homage to the Direct Support Professionals of the past. We found these photos of DSPs in the 1950s and 60s in The Arc New York Archives. Although the photos are nearly 70 years old, they echo the compassion, dedication and kindness direct support staff demonstrate today, and their profound influence on people with I/DD.
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OUR IMPACT
Recreational grants are distributed to Chapters of The Arc New York annually to offer leisure, social and cultural experiences to individuals at each Chapter. Recently, The Arc of Oswego County used the grant to fund a trip to The Wild Animal Park.
THANK YOU TO OUR NYSARC TEAM
Congratulations to Wendy for achieving 10 years of service!
The Arc Erie County used grant money to host their annual picnic, which they’ve been throwing for staff and individuals for more than 20 years.
Wendy oversees NYSARC Trust Services’ review team and scheduled automatic payments, and is responsible for property review. She also supports the intake team with new applications and account setups. She is passionate about serving beneficiaries to ensure they live the quality of life they deserve. Long-time members of the NYSARC team, such as Wendy, have contributed greatly to fulfilling this mission. Thank you, Wendy, for all that you do!
And Arc Onondaga used their NYSARC grant to fund their Family Fun Festival & Resource Fair, as well as their Guardianship Committee’s Annual Fall Dinner.
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STAGEWORKS RETURNS WITH “ALMOST TO OKLAHOMA!” The Arc Oneida-Lewis’ StageWorks program made a triumphant return after a three-year hiatus due to the COVID-19 pandemic. Now in its 24th year of production, StageWorks was established to provide awareness, inclusion, and opportunities for people with disabilities who have interest and talent in the creative and performing arts. The program debuted "Almost to Oklahoma!" an adaptation produced and directed by Ellie Hadity, as a one-night performance for a packed house at the Clinton High School Performing Arts Complex.
TRUST SERVICES WEBINAR SERIES Trust Services hosts one-hour webinars on Thursday mornings each month to help educate the community on ways to protect a person’s financial eligibility for government benefits. Attendance is free; however, registration is required. Click the links below to reserve your spot. All are welcome. Help us spread the word! If you miss a webinar, you can watch recordings on NYSARC Trust Services’ website. WHAT CAN A TRUST PAY FOR? November 16, 2023 @ 11 AM Learn how funds in a pooled trust can be used to supplement a person's government benefits and pay for items and services that will improve a person's quality of life. Register
Angus Armstrong played 'Curly' in the show. He shared an inspiring message for the cast before they took the stage. "Just know that you're champions for being here, and you're not afraid of what's going to happen. I'm just so glad we have this opportunity." Jonathan Lashbrook played 'Ali Hakim.' For him, StageWorks' return meant more than getting back on stage. "I just missed the fun of practice and singing, but I think the biggest thing that impacted me was not being able to see the people I care about, and I do love everyone here," said Lashbrook. "We’re all just there for each other, and that's the beauty of it." The show ended with the cast receiving a standing ovation. All proceeds from ticket, t-shirt, refreshment, and raffle sales will be used to fund future StageWorks performances.
Questions? Contact Us! (518) 439-8323 www.nysarctrustservices.org
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The Arc New York Guardianship Program
Who Will Step into My Shoes when I am Gone?
This is a question often asked by parents facing their own mortality, uncertainty, and planning options when they have a family member with developmental or intellectual disabilities. And this is why The Arc New York's Guardianship Program came to fruition. The Corporate Guardianship Program was established 53 years ago by The Arc New York (then NYSARC) as a service to its members, individuals with I/DD, and their families in New York State to help parents make legal arrangements for the future and gain some peace of mind. The Guardianship Program offers a commitment to parents, relatives, and friends of individuals with intellectual and developmental disabilities that someone will always be available after parents are gone or incapacitated. Under Article 17-A of the Surrogate’s Court Procedures Act, Guardianship provides legal advocacy and support for people with I/DD who need assistance in managing their life affairs. The Mission The mission of the Guardianship Program is to offer a continuum of services for individuals with intellectual and developmental disabilities who require different levels of advocacy and support for decision-making. This is done in the least restrictive manner, while promoting individuality, autonomy, dignity and self-worth. The Guardianship Program honors the personal wishes, preferences and beliefs that afford each person the independence and participation in all decisions affecting their lives. Each individual in the Guardianship Program has their voice heard and respected in every life decision. The fundamental purpose of the Guardianship Program has always been to ensure that if the primary guardian becomes unable to serve, the Guardianship Program will be available to provide ongoing oversight, advocacy and support for those in need of this level of as- sistance in managing their personal life affairs through the local Chapter's volunteer Guardianship Committee.
The Guardianship Program endeavors to offer families a seamless and smooth transition upon the death or disability of the primary or current guardian. The Arc New York blends professional corporate oversight with dedicated volunteerism and staff collaboration to operate its Guardianship Program based on "family and self-determined values and needs." In addition to being mission- driven, with benchmarks, outcomes and standards of practice, guardianship expertise helps to promote the least restrictive intervention while focusing on the person's ability for self-directed living: autonomy, independence, and decision- making. As most caring parents do for their adult children, the program strives to promote independence, autonomy, decision-making and quality-of-life initiatives that include the person's full participation as a citizen and member of their communities. The Promise Through its network of 36 Chapters, The Arc New York is a leader in providing innovative programs and services to 60,000 individuals of all ages with intellectual and developmental disabilities. Since 1970, we have made a life-long promise to these individuals and their families. We don’t come in and out of their lives. They can depend on us now and if ever guardianship – for the entire arc of their lives. The Arc New York's Guardianship Program is the largest program of its kind. The program ensures that medical and dental needs are appropriately met, responds to emergencies, celebrates birthdays and holidays, and provides companionship and transportation to community activities, while promoting self-reliance and independent decision- making to the maximum extent of the individual’s abilities.
Questions? Contact Erica Berman, Director for Guardianship Services bermane@thearcny.org
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GUARDIANSHIP COMMITTEE COLLABORATES WITH STAFF TO SUPPORT INDIVIDUAL
THE ARC ONTARIO SELF-ADVOCACY MEETING
This spring, Robert had surgeries that required him to spend several months in a rehabilitation facility. The Arc Jefferson – St. Lawrence’s Guardianship Committee supports Robert with healthcare decision- making, and they assisted him during
The Arc Ontario's Speak Up, Speak Out Self-Advocacy group convened at the Main Facility's Pathways Area for a dynamic meeting that inspired and motivated participants. The highlight of the gathering was the guest speakers:
Susan O'Hearn, SANYS Regional Coordinator; Josh Derrick, Co-Chair of Arc Alliance's Self- Advocacy Group; and Marilyn Stata, SANYS Board President and SANYS FLX Board Representative. Their presence added significant value to the event as they shared their insights about SANYS (Self-Advocacy Association of New York State) and Arc Alliance with individuals and staff who are passionate about joining or supporting The Arc Ontario's self-advocacy group. Susan, Josh, and Marilyn's presentation was informative and inspiring. They shed light on the importance of self-advocacy, and how individuals can become active advocates for their rights and the rights of others. Their passion for the cause was palpable and empowered everyone in attendance. Speak Up, Speak Out is poised to grow stronger with the knowledge and inspiration gained from this meeting. The organization can't wait to see the positive impact this group will continue to have in advocating for inclusivity, understanding, and respect for individuals with intellectual and developmental disabilities or other challenges in our community.
months of procedures and rehabilitation. The team worked with his care coordinators and staff to ensure Robert received the best medical care possible. The guardianship committee was on standby during Robert’s surgeries and truly stayed engaged. They made themselves available to assist at all hours of the day and night to give the necessary consents, which made a critical difference. While Robert was in a hospital over two hours away, the team at The Arc Jefferson–St. Lawrence visited daily to provide care and companionship. This coordinated effort from Robert’s house staff, clinicians, and his residential nurse meant that he was well cared for, comfortable, and happy throughout the ordeal. The nurse at Robert’s residence has been steadfast throughout his recovery and brings him to every appointment. She even attended an appointment with Robert while on vacation to maintain his continuity of care and relay treatment plans to the staff. After months of hard work, Robert was able to return to his house. He was welcomed home with a picnic held by his friends, roommates, and staff. Now that he is home, Robert is working towards completing therapy. Thanks to the love and support from the Guardianship Committee and his dedicated staff, Robert is doing wonderfully and gaining ground every day.
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HONORING DSPS ACROSS NEW YORK STATE THE ARC ONEIDA-LEWIS’ DIRECT SUPPORT STAFF
During this year’s Direct Support Professional (DSP) Recognition Week, DSPs at The Arc Oneida-Lewis received gift cards and gift bags that were packaged by some of the people they support. The organization also highlighted DSPs that have shown dedication, compassion and exemplify the agency’s mission.
Kaylee Isernia, a community recreation specialist, has worked at Oneida-Lewis for less than a year. She hoped for a career that made more of an impact than her previous retail jobs. "I have family members that have special needs, and seeing how they are treated in society at times made me want to come to The Arc to see if I could make a difference," said Isernia. Like many DSPs, Kylee gets as much back from the people she supports as she brings to their lives. "It's the best feeling, feeling wanted. One girl calls me sunshine every morning. The excitement I see when I get here - the waving, running over hugs - it feels so good to know they like me as much as I care for them."
Rachael Lenig, a residential manager at Oneida- Lewis wanted a job that allowed her to support people in a home living situation, leading her where she is today. "I've never in my life worked with any group of people as respectful, as humble, as appreciative, and honestly, it's helped me immensely in my family life," said Lenig. "My ability to have patience, empathy, and understanding has grown so much in the last year and a half, and it's all from working with these residents."
Marybeth Flick receives supports and services at Oneida-Lewis, and attends programs ranging from CollegeWorks to a Day Hab Without Walls, where she currently assists with a coffee cart that sells treats to staff. Her mother, Karen Flick, couldn't be more thankful for DSPs' vital work and how they have helped her daughter thrive. "She considers the staff in the program her friends, She looks forward to seeing them every day," said Karen. Direct Support Professionals keep the focus on Marybeth's needs, wants, and experiences, which provides Karen and her family peace of mind. "Not only helping her meet goals but making sure she's happy while doing that, and she loves every minute of being here. I want to thank the DSPs. They mean a lot to our family. We need you, and are grateful for everything you do."
A change in career and leap of faith is how Roman Dybacz, also a residential manager, came to find his calling. "A buddy of mine who had worked here told me to apply, and I instantly fell in love with the job," said Dybacz. Roman's secret to success is "to be person centered. You're coming into their home and doing what they want to do. It's like a second family. We have a lot of fun here; we really do.
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HONORING DSPS ACROSS NEW YORK STATE THE ARC LEXINGTON
ARC OF ONONDAGA Arc of Onondaga celebrated Direct Support Professional Recognition Week by highlighting DSPs on social media with selfies they sent and quotes about what they love about their job.
Rachel Price has worked for Arc of Onondaga for 20 years. Rachel says she loves, “establishing an awesome rapport with the individuals that I provide services for, as well as working with the amazing staff and awesome supervisor.”
Bonnie Fisher is a DSP in The Arc Lexington’s Schoharie County programs. She has a natural ability to bring people together and help them get involved in activities and opportunities that greatly enhance their lives. Bonnie creates camaraderie among her team members and exemplifies what it means to be a good DSP. Her larger-than-life smile and sense of humor bring light to any situation. She is observant, expressive, and a great advocate for the people she works with. Bonnie is always committed to ensuring that every person she supports lives their best life. Thank you, Bonnie, for always going the extra mile for the people you support and for being someone that can be counted on! THE ARC OTSEGO
Jhane Hammons has been part of the Arc of Onondaga team for 5 years. She says: “I love seeing the smiles I create on the faces of the individuals.”
Mary, a DSP Team Leader at The Arc Otsego’s Oneonta Day Services, has been with the agency for 23 years. Mary says, “My favorite part of the job is helping the individuals I support achieve new goals, like exploring new places in the community
Alicia Mullie has been with Arc of Onondaga for 7 years. Alicia says: “I love being a DSP because I get to come into work and make the individuals laugh and smile even on their not so good days.”
and having them do something for the first time ever; this work is very rewarding. Knowing that I have helped them succeed at some part in their life is very rewarding and it feels great when I can tell they know that I care about them. My best memory from working here is when I got to take a gentleman I support to sit on the beach for the first time and feel the sand with his feet; it brought him to tears because it meant so much to him, and to me!”
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HONORING DSPS ACROSS NEW YORK STATE
LIBERTY ARC
AHRC NASSAU
David Euzebe was hired a little over a year ago as a per diem staff for AHRC Nassau. On David’s first day, the fear in his eyes was obvious, not knowing what to expect or what was expected of him. Management was patient, and guided him to explore and familiarize himself with the likes and dislikes of the individuals. As time progressed, David successfully completed all required trainings, and was eventually able to help out a bit more, get to know the residents and improve on his new skills.
To celebrate Direct Support Professional Recognition Week, Liberty ARC named Katie Garcia as the 2023 DSP Rookie of the Year. Katie is a residential DSP who is currently in her first year of employment at the agency. Katie’s manager nominated her for this award because she has quickly become an asset to the home she works in and the people she supports. “Katie started in April of this year. She came into the home with a positive attitude and goes above and beyond to make sure the people in the home are able to live their best lives,” reads the nomination. “She is caring and compassionate which makes her stand out on a daily basis. Katie is a team player and makes sure that while she is on shift everything is completed before she walks out the door. Katie has not only built an outstanding relationship with the people and staff at the home but also at other locations. Every day she takes the time to do something special with the people she works with, even if it’s just getting outside and going for a walk or playing a game. She jumps in and asks what needs to be done to ensure the days day go as smoothly as possible, and picks up extra shifts whenever she is able. Katie is flexible with the day to day tasks to make sure that everyone’s needs are met.”
David has become the agency’s go-to man to assist with just about anything! He is always willing to lend a helping hand, whether assembling furniture, troubleshooting a television that’s not working, or ironing out kinks in the med area. As David is pursuing a career as a Physician Assistant, he has taken the lead with the house’s medical needs, including running appointments, med counts, ordering, and ensuring all medical needs are met and in compliance. David continues to go above and beyond to ensure he gives his all to meet the needs of the individuals and the house. Thank you, David!
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HONORING DSPS ACROSS NEW YORK STATE
AHRC NEW YORK CITY
“Maggie is a wonderful DSP,” said Brinda Blythe, manager at Agovino. “She’s got what it takes. She interacts and advocates for all 14 residents. She takes initiative and knows when they’re not feeling well.” Blythe recalled Wainwright making her feel welcome on her first day at AHRC NYC as a substitute 20 years ago. “She makes everyone comfortable, shows them around, and helps with any questions. She’s a gem. She doesn’t need to be asked to help, she just does it.” Wainwright, a Bronx resident, said she never imagined finding such a rewarding career. “I can be having a rough morning, and as soon as I walk in the door, one of the people I support wants to give me a hug, someone else is yelling my name, while another person is telling the other to be quiet,” Wainwright said with a laugh. “It makes my day.” She also enjoys the camaraderie with staff. “I love what I do here,” Wainwright said. “When I come to work, I have fun.” Perhaps, that’s why, as she approaches her 70th birthday in October, she hasn’t been talking about retirement. She began a three-year countdown to retirement at age 66. But that didn’t happen. “I think if I retired now, I’d be visiting here every day,” Wainwright said, quickly adding, “and then I’d have to come back to work.” Whether it’s shopping for the Agovino residents, taking them to medical appointments or into the community for a meal, Wainwright has been exceptionally devoted to her role. “I’ve always loved being a DSP,” she said.
Maggie Wainwright never imagined working with people with intellectual and developmental disabilities in an AHRC NYC residential program. Now, she can’t imagine doing anything else. Wainwright recalled joining her mother in caring for her two brothers, Joseph and Lawrence, who both died at a young age. “They required a lot of care,” she said of her mother’s decision to keep them home. She recognized that she was good at working with people who needed assistance. That led her to join AHRC New York City in 1998 as a Direct Support Professional at the Agovino residence in the Bronx. DSPs throughout the state work for many organizations supporting nearly 140,000 New Yorkers with intellectual and developmental disabilities, including autism and Down syndrome, in community-based group homes, day and employment programs, recreation, and other services. Even though many of the Agovino residents have communication challenges, Wainwright understands their wants and needs.
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NADSP E-BADGE ACADEMY
Congratulations to Capri Miller and Robby Zuti- Lewis of Arc of Onondaga (The Collaborative of NY). Capri received her DSP-1 Certification, and Robby has become a Certified Front Line Supervisor!
AHRC New York City AHRC Nassau Coarc (Columbia County) The Arc of Delaware County, NY Mountain Lake Services (Essex County) The Arc Mid-Hudson (Greene, Putnam, Ulster) The Collaborative of NY Requests for Proposals were open for eligible New York state Home and Community-Based Service provider organizations to participate in the grant. Last November, 17 organizations representing all regions of New York were chosen and awarded seats in the NADSP E- Badge Academy with the goal of over 800 DSPs and frontline supervisors achieving Last year, Governor Kathy Hochul announced that OPWDD had entered into a $10 million partnership with the National Alliance for Direct Support Professionals (NADSP) to expand opportunities for professional credentialing for Direct Support Professionals throughout New York State. OPWDD's partnership with NADSP provides access to three levels of direct support professional credentialing and a frontline supervisor certification through participation in its E-Badge Academy. The project is supported by federal funds OPWDD is receiving through the American Rescue Plan Act of 2021. The National Alliance credential is competency-based and modeled on the Centers for Medicaid and Medicare Services' Direct Service Workforce Core Competencies and the National Alliance Code of Ethics. certification in the first year. The organizations include: Recently, many employees from these organization have achieved certifications from the E-Badge Academy. We would like to recognize and congratulate them.
Brenda Hallock, of The Arc Mid- Hudson, recently received her DSP-1 Certification. Brenda has been with the agency for 16 years, and said she’s learned ways to be more person-centered with her work through the E- Badge Academy.
Jannifer Woodhall of Mozaic (The Collaborative NY) has received Levels 1, 2, and 3 DSP Accreditations through the E-Badge Academy!
(Continued on page 6)
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NADSP E-BADGE ACADEMY
The Arc Ontario recently had three employees receive E-Badge certificates. Sarah received her DSP-2 Certification.
Congratulations to Coarc’s (Columbia) NADSP E-Badge Academy credential for the 2023 2nd quarter! The following DSPs achieved credentials:
Sarah Daley – DSP-1 Charley Decker – DSP-1 Destinie Heald – DSP-2 Ashley Herber – DSP-2 Paige Herber – DSP-2 Jodi Pelas – DSP-2 Hayley Revene – DSP-1 Bobbi-Jean Schrader – DSP-1 & DSP-2 Amy Sheak – DSP-3 Bailey Winters – DSP-2 & DSP-3
Mackenzie received a Front-Line Supervisor Accreditation in the E-Badge Academy.
And Jessica received her Front-Line Supervisor Accreditation.
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In September, NADSP held its annual conference in Pittsburgh. Chapter staff from across the state who are enrolled in the E-Badge Academy attended the conference and met with OPWDD Commissioner Kerri Neifeld, NADSP Executive Director Joe Macbeth, and keynote speaker Dr. Mykee Fowlin. NADSP E-BADGE ACADEMY
The Arc Monroe’s Cassidy Strassner, who has her DSP-3 Certification, pictured with Joe Macbeth
AHRC NYC Staff pictured with Kerri Neifeld.
AHRC Nassau staff & leadership at the conference.
The Arc Mid-Hudson’s Lia Villon, DSP-1 Certification; Alissa DeGraff, DSP-1 Certification; and Tracy Coddington, DSP-1 Certification, with John McHugh, CEO of The Arc Mid-Hudson.
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DELARC & AHRC NYC PROGRAMS PRAISED BY CQL The Council on Quality & Leadership Achievements The Arc of Delaware County (Delarc) and AHRC New
CQL also praised AHRC NYC on a new initiative in their Adult Day Services program that promotes remote Augmentative and Alternative Communication (AAC) Coaching Sessions. This new initiative provides DSPs, who support people that use communication devices throughout its centers, with a forum to learn AAC best-practices. It also offers a place to “voice” their AAC experiences. One-hour remote sessions are conducted once a week for two consecutive weeks, with a third session offered to DSPs who wish to learn how to customize systems. Sessions are repeated every six weeks with DSPs invited to return. Small groups and hands-on, skill-building exercises promote professional development through engagement and active learning. The coach is a Speech- Language Pathologist. Sessions also focus on language learning and use, as they contribute to AAC and communication effectiveness. Seventeen DSPs from 10 adult day service centers have attended sessions. Through personal development, DSPs increase their self-worth, intrinsic value as employees, and ownership of services. “I learned that there are many different types of communication devices with different software.” DSP, AHRC NYC Chapters interested in starting a similar program can read the steps AHRC NYC took to implement theirs here. CQL ACCREDITATIONS Congratulations to Liberty ARC (Montgomery) and The Arc Rensselaer for achieving CQL’s Person-Centered Excellence Accreditation. CQL's Person-Centered Excellence Accreditation is a four-year accreditation that works to transform person-centered philosophies into organizational practices and utilizes data to inform and drive agency- wide decision-making.
York City were both recognized recently by The Council on Quality and Leadership (CQL) for innovative programs that help improve the quality of life and services for the people they support. Delarc’s paid internship program, FwdBound, has seen a lot of success in the short time it has been implemented. The internship is geared towards teens who work with direct support professionals while learning all about the organization and the field. Delarc follows all Department of Labor rules and regulations and has been delighted with the energy the young, bright minds bring to the agency. Two interns worked with the organization until their graduation from high school in June, and both of them signed on as substitute staff during their college breaks and want to work full time in the summer, which is a win for the agency! “To be an intern with that organization has been a highlight of my senior year. I created relationships that I hope will last forever.” - Meyer, FwdBound Intern FwdBound interns cannot work alone, but they are very helpful to DSPs. They join on recreation/respite trips, help out in houses, hang out with people that receive supports, and bring new ideas to the agency. One intern loves to play guitar, and he befriended a man at the agency who has dementia. The Intern brings his guitar to visit the person, and they play and sing without a care in the world. The man with dementia unpacked his guitar from storage, and he keeps it on his lap when the intern is visiting. It truly is life enhancing. “I could go on and on about how much everyone loved our intern! She became one of the team so quickly and added so much to our team. We will miss her after graduation.” - Katie, House Manager Chapters interested in starting a similar program can read Delarc’s steps for implementation here.
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