Case for Support
Breast Cancer Network Australia Australia’s Leading Breast Cancer Consumer Organisation
BCNA Ambassador Raelene Boyle and members of the BCNA network. Rockhampton, Queensland. October 2022
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Case for Support 2023
Table of contents
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Executive Summary
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Breast Cancer Network Australia
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Some Key Facts
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Strategic Plan 2020–2025
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BCNA’s Strategic Pillar of Voice
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Policy and Advocacy
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Global Leadership In Metastatic Breast Cancer Advocacy
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Consumer Engagement ‘Seat At The Table’
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BCNA’s Strategic Pillar of Connection
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Online Network
Field of Women 2023
BCNA Volunteer Program
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Matched Giving Campaigns
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BCNA’s Member First Digital Transformation
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BCNA’s Strategic Pillar of Information and Support
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My Care Kit My Journey
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Breconda Breast Reconstruction Decision Aid
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BCNA Endowment Fund
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Breast Cancer Network Australia
Executive Summary
Breast Cancer Network Australia When Lyn Swinburne AO founded BCNA in 1998, her vision was to ensure all Australians affected by breast cancer receive the best care, treatment and support. In 2023, that vision remains our priority. Today we are needed more than ever in the context of a disrupted health sector where access to optimal care has been severely impacted by the effects of COVID and ongoing stresses on health budgets. We have built a strong and resilient network that brings together over 175,000 individuals. Our network reflects the needs of women and men affected by breast cancer and those close to them. We focus on the personal impact of this disease by advocating for the very best care, treatment and support. We provide information and support to those who need us.
Breast Cancer Network Australia (BCNA) is Australia’s leading breast cancer consumer organisation. We focus on the personal impact of breast cancer by providing information that empowers, using the collective experience of thousands of Australians to advocate for a strengthened health system. BCNA’s work leads to improved quality of life and health outcomes for all Australians affected by breast cancer. Our collaborative leadership approach is contributing to advances in patient-centred care across all cancers. Breast cancer incidence continues to rise, with over 20,000 people diagnosed in Australia each year. Most people will survive breast cancer, but they face lifelong survivorship challenges. It is estimated that over 240,000 people are living with or beyond breast cancer in Australia today. BCNA is an independent, trusted leader in the cancer sector. Our ability to impact breast cancer outcomes is directly linked to private sector support which represents 70 per cent of our income. This Case for Support outlines our current program priorities and the private sector support needed to fund them. Please join us in making a tangible difference for all Australians affected by breast cancer.
If ever I'm in need of guidance or simply feel alone through my diagnosis, I know I can turn to the BCNA family for information and support. It is the most
accepting and loving community I have ever been part of. Rebecca
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Case for Support 2023
Our Services
BCNA Helpline – BCNA’s free and confidential Helpline provides compassionate and practical support to over 10,000 callers each year. My Journey – Our free online information resource that provides reliable, up-to-date information tailored to suit each person’s diagnosis, with over 15,000 registered users. Online Network – A peer support network where people can connect with others who have a lived experience of breast cancer. It had over 220,000 visits in 2021/22. Information Forums – Each year, we present ten in-person information forums across regional and rural Australia for people who have been diagnosed and health professionals, with the support of the Australian Government Department of Health and Aged Care.
Digital Resources and Events – Our website houses a range of digital resources covering a variety of topics that share insights from health professionals and those with a lived experience. Last year, there were over 315,000 unique visits to our website and over 27,000 people attended our digital events, 27 per cent of them from rural and regional Australia. Podcast Library – The ‘Upfront About Breast Cancer’ podcast series provides advice, stories and support and received over 68,000 downloads in 2021/22. My Care Kit – Available to those who undergo surgery for breast cancer, the My Care Kit contains a specially designed Berlei bra and soft form/s, provided through a partnership with Berlei. Approximately 12,000 kits were distributed in 2021/22.
FUNDING OPPORTUNITIES
FUNDING REQUIRED
PAGE
Strengthen Our Voice Policy and Advocacy
$952,200 $89,660 $34,845
13 15 17
Global Leadership in Metastatic Breast Cancer Advocacy
‘Seat at the Table’ Consumer Engagement
Deepen Our Network’s Connections Online Network
$201,250
20 22 23 24 26
Field of Women 2023
$10,000–$250,000
BCNA Volunteer Program Matched Giving Campaigns
$53,795
$60,000–$250,000
Member First Digital Transformation
$86,250
Empower with Information My Care Kit
$156,630 $431,250
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My Journey
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Breconda Breast Reconstruction Decision Aid
$51,750
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Secure BCNA's Future BCNA Endowment Fund
Unrestricted gifts
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Breast Cancer Network Australia
Some Key Facts
Our reach
175,000 members across Australia, with 25,000 new members in 2022
Information and support
315,000+ unique visits to bcna.org.au
22 podcast episodes downloaded nearly 68,000 times
Breast Cancer Network Australia
1800 500 258
Helpline answered 10,778 calls and emails
In partnership with Berlei, approximately 12,000 My Care Kits were distributed free to people after surgery
Social media reached more than 3.1 million people
Tailored content for First Peoples, LGBTIQ+ communities and men with breast cancer added to My Journey
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Case for Support 2023
Coming together
Online Network 1,000+ peer-to-peer discussions 220,000+ visits to our online network
20,000+ people attended digital
Advocacy wins: Metastatic breast cancer drug Trodelvy
events, 27 per cent from regional, rural and remote Australia
listed on the PBS
2023 breast cancer statistics in Australia
20,675 Australians It is predicted that
people were expected to be diagnosed with breast cancer every day. 57 ON AVERAGE,
3,214 people will die from breast cancer each year.
217 men
will have been diagnosed with breast cancer, including
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Breast Cancer Network Australia
Strategic Plan 2020–2025
BCNA’s 2020–2025 Strategic Plan aims to effect system change to improve breast cancer care in Australia.
VOICE that harnesses the power of lived experience and experts • We are the sought-after voice on topics relating to breast cancer policy, research and service development for governments, health service providers, researchers and the broader community to ensure decisions and practice are grounded in patient experience. • We are consumer-led and work in partnership with our network to improve the health system for the benefit of every individual affected by breast cancer. CONNECTION that creates belonging • We enable a sense of belonging for so many in our network, whether through connection to others, to a group, to BCNA or to information and resources that can make a difference in an individual’s care, experience and wellbeing. • We strive to ensure that everyone in our network feels supported.
INFORMATION AND SUPPORT makes a positive difference to the experience and outcomes of consumers • We are recognised as a trusted, accessible, and consumer-led source of information. • We respond to the voice and lived experience of our consumers and our network by focusing on information and support that help address areas of concern. • We provide evidence-based information and support that empowers individuals affected by breast cancer to make better decisions for themselves and those they care for.
The following programs address BCNA’s strategic pillar of ‘Voice’: • Policy and Advocacy Program • Global Leadership in Metastatic Breast Cancer Advocacy • Seat at the Table
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Breast Cancer Network Australia
Strategic Pillar – Voice
• Policy and Advocacy Program • Global Leadership in Metastatic Breast Cancer Advocacy • Seat at the Table
When BCNA speaks, people listen. Patricia Edgar AO Founding Chair BCNA
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Case for Support 2023
Policy & Advocacy
voice on topics relating to breast cancer policy, research and program development for government, health service providers, researchers and the broader community. Only a consumer-driven organisation like BCNA can leverage the powerful voices of people who have experienced breast cancer firsthand. We respond to needs in real time, provide solutions and bring the power of the patient experience to life.
Advocacy has always been at the heart of BCNA. Our voice has influenced local solutions and assisted in fundamental changes being made to delivery of breast cancer care. This has included the provision of access to high-cost drugs, such as Herceptin, through the Pharmaceutical Benefits Scheme. Our leadership has been recognised internationally. The purpose of our efforts in policy and advocacy is to improve the lives and outcomes of all Australians affected by breast cancer. We are the sought-after consumer
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Breast Cancer Network Australia
Policy & Advocacy Program
for reconstruction surgery and sets out clear recommendations to address these for government. In 2023, to support our focus on improving equity of access to optimal care, our Making Metastatic Breast Cancer Count issues paper highlighted the lack of data that is hindering support for those with metastatic breast cancer. As we work toward the final year of this strategy, we will continue our focus on metastatic breast cancer, ensuring those living with this disease are heard. We will also continue to advocate for greater investment in services providing specialised mental health support and other supportive care needs for those living with and beyond breast cancer.
BCNA's Policy & Advocacy Strategy 2021–2024 In 2021, BCNA developed its first multi-year policy and advocacy strategy following extensive consultation with our network to identify key issues for consumers. This strategy is guiding our policy and advocacy efforts through to 2024. Key outcomes from our focus on the financial impacts of breast cancer in 2022 have been the listing of Trodelvy on the Pharmaceutical Benefits Scheme, an important drug that extends quality of life for people living with metastatic breast cancer, and the release of our Breast Reconstruction in Australia 2021 Report that revealed unacceptable out of pocket costs
Mr Douglas Macmillan, Sam Mills, Dr Jodi Steel, Dr Sanjay Warrier and Kirsten Pilatti at the 2022 Australasian International Breast Congress. Brisbane, Queensland
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Case for Support 2023
In 2001 and again in 2006 BCNA worked with government, health professionals and suppliers of the treatment to have trastuzumab available through the Pharmaceutical Benefits Scheme, resulting in access to this life saving drug for all Australians. Since 2006, when trastuzumab was made available on the Pharmaceutical Benefits Scheme, more than 32,000 Australians have benefited. While we do not know the agreed price between the pharmaceutical company (Roche) and the Government, it is estimated that the private cost per patient was $50,000 in 2006 before its listing. Our efforts in driving access to trastuzumab and equity for all Australians has not only provided over $1.6b in potential household savings, it has also resulted in positive health outcomes including preventing breast cancer progression or recurrence.
Why is funding needed?
We know that even if someone diagnosed does not reach out to BCNA for support, they are impacted by our work because of our advocacy. It is an area that requires complete independence from government and the for-profit cancer sector to ensure when we voice the issues and concerns of those diagnosed, we do so without fear or favour. BCNA is a highly regarded consumer group that has worked collaboratively with the sector to ensure the very best care, treatment and support is delivered to all those affected by breast cancer. One of the highest impact advocacy campaigns BCNA has led was for Herceptin (trastuzumab). Trastuzumab is a very effective drug for women with HER2-positive breast cancer. It is, however, an expensive drug which many Australians could not afford without government assistance.
FUNDING OPPORTUNITIES (PER YEAR)
Policy & Advocacy Staff salaries
$674,000 $15,000 $15,000 $70,000 $15,000 $10,000 $15,000 $11,000 $3,000 $828,000 $124,200
Leadership and professional development
Conference registrations
Consultants’ fees – research, reporting and evaluation
Strategy/project design communications
Printing
Advocacy campaign videos, case studies
Software
Memberships
Total Annual Program costs
Administration @15%
TOTAL
$952,200
* Funding opportunities are exclusive of government funding
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While celebration of improved breast cancer survival rightly acknowledges the incredible progress made in breast cancer treatment and care, it effectively shuts out the voices of those who will not survive, that is, those living with metastatic breast cancer. It could be said we are “hidden in plain sight.”
Andrea Smith, Chair, BCNA Metastatic Breast Cancer Lived Experience Reference Group
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Case for Support 2023
Global Leadership In Metastatic Breast Cancer Advocacy
whose goal is to improve and extend the lives of people living with advanced breast cancer in all countries worldwide through awareness and advocacy. BCNA has identified high unmet supportive care needs amongst those living with metastatic breast cancer. This is further affirmed by the positive reception across the sector of our work in making those with metastatic breast cancer more visible both from an internal service delivery perspective, and through our advocacy to health services and policymakers.
Metastatic (or advanced) breast cancer is breast cancer that has spread beyond the breast to other organs. It is treatable but not curable. People living with metastatic breast cancer have signi cant health care needs, requiring ongoing and often intensive treatment. Thanks to new advances in treatments, metastatic breast cancer survival has doubled in the past 20 years. However, health care goals extend beyond prolonging life and must also incorporate ways to define and live a quality life with metastatic cancer. BCNA is progressing advocacy priorities pertaining to metastatic breast cancer, aligned with our strategic focus on living well with breast cancer, including a strong Metastatic Breast Cancer Lived Experience Reference Group that supports our work. Our issues paper, Making Metastatic Breast Cancer Count, is one of the first attempts to quantity the number of Australians living with this disease. It calls for national leadership to see consistent collection and reporting of cancer stage and recurrence data to help better understand and address unmet needs, especially for supportive care. This year, BCNA plans a national roundtable on metastatic breast cancer data and, as the newly appointed President of the General Assembly of the Advanced Breast Cancer Global Alliance, will play a leadership role in developing its 2023 international conference in Portugal. The ABC Global Alliance is an association of 150 organisations from over 50 countries
Why is funding needed?
To maximise the opportunities for BCNA’s metastatic breast cancer advocacy in Australia and its global leadership of the ABC Global Alliance, BCNA will create a part-time staff position to support this new and important stream of work, while ensuring continuity of service delivery in other areas and across the array of issues related to all breast cancer experiences. The role will support BCNA’s leadership in the ABC Global Alliance, plan and manage advocacy events in Australia and overseas, support engagement with Cancer Australia and the Australian Cancer Plan and coordinate our Metastatic Breast Cancer Lived Experience Reference Group. The role will provide BCNA with specialist expertise in public health, clinical research and health promotion activities for metastatic breast cancer.
FUNDING OPPORTUNITIES (PER YEAR)
Metastatic Breast Cancer Advocacy Staff Position Annual salary costs
$77,966 $11,694
Administration @15%
TOTAL
$89,660
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I found the training highly worthwhile. It reinforced my understanding of the purpose of BCNA and the role of Consumer Representatives, together with my interest and determination to continue to be involved and to contribute.
BCNA Consumer Representative
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Case for Support 2023
Consumer Engagement ‘Seat At The Table’
online courses followed by a series of face-to- face workshops. Ongoing training and support is provided throughout their time in the role and is a requirement of being a Consumer Representative. There are currently 47 active Consumer Representatives in the Seat at the Table program, contributing to 29 active external projects and six grant applications. Why is funding needed? To provide training, including refresher training, for Consumer Representatives to ensure they have a thorough knowledge of breast cancer and advocacy and can represent the views of a diverse group of those affected by breast cancer. To develop a mentoring program that provides formal peer support and transfers skills from more experienced consumer representatives to those new to the program.
Since 2001, BCNA has run the internationally recognised consumer representative program, ‘Seat at the Table’ (SATT). BCNA’s Consumer Representatives (CRs) work with breast cancer researchers, advisory committees, policy makers and service providers across Australia, ensuring that the diverse views, needs and experiences of people affected by breast cancer are considered in decision making. Consumer Representatives are people who have been diagnosed with breast cancer, who are trained to represent the broad views, needs and experiences of people living with a breast cancer diagnosis and who can speak on their behalf. Consumer Representatives do not simply express personal opinions. Instead, they speak for this wider group of consumers. The active and meaningful engagement of skilled consumers has a positive influence on research, policy, systems, service and practice through influencing their relevance, quality, safety, effectiveness, efficiency, acceptability and appropriateness. All Consumer Representatives complete BCNA's Consumer Representative Training program, a blended learning program of three
FUNDING OPPORTUNITIES (PER YEAR)
Consumer Engagement – Seat at the Table Changes/improvements to Review and Survey Group Meetings with Consumer Representatives and guest speakers Consumer Representative and staff travel and accommodation
$5,000 $7,700 $17,600 $30,300
Total Annual Program Costs
Administration @15%
$4,545
TOTAL
$34,845
* Funding opportunities are exclusive of government funding
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Breast Cancer Network Australia
Strategic Pillar – Connection
• Online Network • Field of Women 2023
• BCNA Volunteer Program • Matched Giving Campaigns
It gives me confidence going into chemotherapy that I have the support and knowledge of this great community.
Online Network user
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Breast Cancer Network Australia
BCNA Online Network
The BCNA Online Network allows those with breast cancer to support one another, share their personal experiences and feel empowered to have an active voice in their own treatment.
Fear, loneliness and uncertainty are common feelings amongst those diagnosed with breast cancer. BCNA’s Online Network, launched in 2010, is a moderated peer to peer online community where Australians affected by breast cancer can find connection and support and share their experiences. The network includes over 20,000 people from metropolitan, regional, rural and remote Australia living with breast cancer, family, friends and health care professionals. There are 40-60 new users each month. The primary objective of the Online Network is to provide an active online peer support community where Australians affected by breast cancer can find support at any time of the day or night. BCNA’s Online Network is a dynamic and evolving community that provides people with a safe space to connect with others going through a similar experience, share stories or ask for advice. As well as the main online network forum, special interest groups such as ‘Living with metastatic breast cancer’, ‘Men living with breast cancer’ and ‘Choosing breast reconstruction’ allow members to create meaningful connections with other people sharing similar experiences.
Why is funding needed?
We will be implementing a new Digital Experience Platform. However, the next steps once that is in place are to: • Ensure we bring across the existing members and all their conversation threads to the new platform, without adversely impacting their experience. • Inform our community so they are aware of this pending change and support them through the process, so they have a positive experience moving onto the new platform. • Help our network understand how to get the most out of this new service, exposing them to the additional benefits they will enjoy, on top of what they get today from the Online Network. • Promote the Online Network to people who are currently using other BCNA services but are unaware of this service. • Regularly analyse patterns of usage and review member feedback, to continuously learn from our members and improve the experience we provide.
FUNDING OPPORTUNITIES (ONE-OFF)
Online Network Online Network— costs of transitioning all services to one platform
$50,000
Administration @15%
$7,500
TOTAL
$57,500
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Case for Support 2023
When I was diagnosed with breast cancer, I experienced all the usual emotions— shock, anger, disbelief, sadness. I found out about Breast Cancer Network Australia from my GP and as well as lots of great resources found the Online Network—
an online community of others who have been
diagnosed with breast cancer. I found the network a great source of information and comfort including the private group “Choosing Breast Reconstruction.”
Online Network user
FUNDING OPPORTUNITIES (RECURRING)
Online Network Licence costs per annum, based on current usage Staff to facilitate, look for insights in behaviour, review feedback and recommend improvements IT support, administration and enhancement
$50,000
$50,000 $25,000 $125,000
Total Annual Program costs
Administration @15%
$18,750
TOTAL
$143,750
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Breast Cancer Network Australia
Field of Women 2023
Field of Women is Australia’s highest-profile opportunity to bring to public attention the experience of people affected by breast cancer. It is an unparalleled platform for building awareness about the importance of prevention while also offering those affected a visible show of support. Field of Women is BCNA’s signature event. It aims to bring the statistics of breast cancer to life in a meaningful and visually powerful way to highlight the personal impact of breast cancer on our community. Held previously in 2005, 2007, 2010, 2014 and 2018, this year’s sixth staging of Field of Women will be the feature event acknowledging BCNA’s 25th anniversary and the achievements and advancements made in supporting Australians affected by breast cancer over that time. For more details please contact: Marina Dowling, Field of Women Project Manager mdowling@bcna.org.au
Why is funding needed? • Field of Women is a major event that is outside BCNA’s annual program of activity. • In order to achieve the awareness and connection objectives of the event and reinforce essential prevention and early detection messages that are at the heart of Australia’s world leading survival rates, BCNA requires funding to cover program components, staffing, logistics, marketing and digital activation.
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Case for Support 2023
BCNA Volunteer Program
This funding project will support all our activities and expand our opportunities to engage with, reward and recognise our volunteers.
The Impact of BCNA Volunteers:
• Approximately 12,000 My Care Kits (post- mastectomy bras) are distributed by volunteers each year. • Nearly 50 trained Consumer Representatives speak up to bring about change and ensure that people diagnosed tomorrow have a better experience than those today. • Our annual Pink Lady Match brings together hundreds of volunteers from corporate Australia and the wider community to deliver a special experience for all those attending, raising awareness and funds for BCNA. • Office volunteers provide hundreds of hours of support for vital administrative tasks. • Skilled volunteers help BCNA move forward with our digital, legal and policy needs.
Like most charities, BCNA has relied on the generosity of volunteers since we began in 1998. Volunteers are the glue that connect BCNA to the community right across Australia. Our volunteers range from those who assist us with administration support in our office in Melbourne to highly regarded advocates in our Seat at the Table program across Australia. To be a highly functioning organisation that leverages and generates greater impact through volunteering we must have robust systems, processes and support that take advantage of the incredible skills of our network Volunteering provides empowering, flexible, accessible, inclusive, connecting, valued and collaborative experiences.
Why is funding needed?
To introduce a new staff resource to support BCNA's extensive volunteer program.
FUNDING OPPORTUNITIES (PER YEAR)
Volunteer Program Volunteer Coordinator annual salary costs
$46,779
Administration @15%
$7,016
TOTAL ANNUAL PROGRAM COSTS
$53,795
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Breast Cancer Network Australia
Matched Giving Campaigns
Why is funding needed? • Support for matched giving campaigns in June and November to coincide with tax and Christmas giving; key periods when people make donations each year. • Support for the Field of Women 2023 ‘Virtual Stand with Me at the G’ campaign, which seeks to engage people from across the country by buying a virtual place and donating. • Any area of program interest offers the possibility for matched giving to leverage additional support from a community of donors engaged with BCNA.
BCNA is constantly looking for new ways to innovate, work smarter and leverage every dollar. We now have evidence that we can ignite peoples’ generosity through matched donations. Matched giving campaigns provide incentives and exciting content that motivate other supporters to donate during time limited campaigns. For example, supporters have 24 hours to donate and have their gift matched to double their impact. For every dollar the community raises, the campaign sponsor(s) then gives a dollar. As an example, $10,000 becomes $20,000 and the donor’s gift is effectively doubled. BCNA has found this to be a highly effective way to engage and motivate new donor groups and reactivate lapsed donors at key times of the year.
FUNDING OPPORTUNITIES (PER YEAR)
Matched Giving Campaigns Matching Campaign Giving opportunities
57 Hours of Giving campaign – $60,000 Giving Tuesday campaign – $60,000 Field of Women campaign – $250,000
Total Annual Program costs
$370,000
Administration @15%
$55,500
TOTAL ANNUAL PROGRAM COSTS
$425,500
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Breast Cancer Network Australia
BCNA'S Member First Digital Transformation
When complete, we will be able to deliver more timely and informed content, as well as information on specific topics that is tailored to individual needs, which is not possible with our current digital infrastructure. There are many more benefits that our members will enjoy as we bring these services onto a single platform over the next 15 months. It will also provide a contemporary digital foundation for future improvements in our information and support services, and a channel for surfacing issues of those diagnosed that inform our policy and advocacy priorities.
BCNA has identified that our existing digital systems will never be able to meet the changing expectations of our members and broader network. Members have told us they want to be able to access the information and support they need easily and simply on a single platform. They want to choose the information they receive from BCNA and maintain their own preferences for types of information they receive, as well as have BCNA send them relevant content in the way that is best for them, whether that is via email, text message, social media, a phone call or mail. To meet these needs, we are undertaking a digital transformation and will be implementing a Digital Experience Platform. This will enable BCNA to continue to deliver the vital services provided by the Online Network, My Journey and Breconda, but from a single web platform so the experience will be tailored and consistent.
Why is funding needed?
In order to achieve the digital transformation, we need to: • Engage a digital design agency to work with us. • Engage many members of our community to seek their feedback. • We will need the design agency to collect all feedback and come up with naming and design recommendations that we adopt moving forward.
FUNDING OPPORTUNITIES (ONE-OFF)
Digital Experience Platform Cost of agency
$75,000
Administration @15%
$11,250
TOTAL
$86,250
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Breast Cancer Network Australia
Strategic Pillar – Information and Support
• My Care Kit • My Journey • Breconda Breast Reconstruction Decision Aid
My replacement bra arrived yesterday. Thanks for going the extra mile for me. I now have a bra that fits and is comfortable. I appreciate your effort and that Berlei is making this donation to women with breast cancer.
My Care Kit recipient
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Case for Support 2023
My Care Kit
For over 15 years, BCNA has provided the My Care Kit for women who have recently had breast cancer surgery. It contains a specially- designed bra and soft form/s and is provided free of charge
I would like to thank you for the support you provide when one finds herself with a breast cancer diagnosis. Also, a thank you to Berlei for their support and for the beautiful bra that I have received. To know that people care and are there to support me if needed in itself helps one feel more positive about what is ahead.
through a partnership between BCNA and Berlei. Each year approximately 12,000 kits are distributed and over 180,000 have been provided to people across Australia since 2005. The My Care Kit is still the most significant entry point for most people connecting with BCNA. Berlei and BCNA receive many touching letters of thanks as the Kit arrives, often as a surprise, at one of the most challenging times in a woman’s life. While the Kit’s post-mastectomy bra is a gift of long time BCNA partner Berlei, BCNA is responsible for the cost of postage and the inclusion of printed flyers outlining our information and support services. There is also the potential to augment the existing kit with an additional gift for the women receiving it.
My Care Kit recipient
Why is funding needed?
• Postage costs funded by BCNA are approximately $100,000 per year. • Materials to inform people of the other services BCNA provides and invite them to become more deeply connected. • An additional gift relevant to women post-surgery would be welcome.
FUNDING OPPORTUNITIES (PER YEAR)
My Care Kit MCK product review focus groups
$10,000 $10,000 $10,000
Promotional material
Consultant fees for review of communications strategy
Printing Postage
$2,200
$100,000
Staff travel
$2,500 $1,500
Meeting expenses Total Annual Costs Administration @15%
$136,200 $20,430 $156,630
TOTAL
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Breast Cancer Network Australia
My Journey
for each diagnosis type and treatment stage. It also provides essential information on a range of associated topics such as financial impacts, allied health and supportive care options, diet, exercise, fertility preservation and more in a range of formats such as articles, videos, webcasts and podcasts. There are also specialised content pathways for groups of people with different needs or who may experience additional barriers including men, young women, First Peoples, members of the LGBTIQ+ community and people who live in regional, rural or remote areas. While those with breast cancer acknowledge the positive experiences they have had with dedicated healthcare practitioners and supportive institutions, there is still much disparity in care across the country. In
For those diagnosed with breast cancer, navigating treatment is complex with many different clinicians and health services involved. BCNA has developed My Journey, a digital resource that provides tailored, high quality, evidence-based information and insights for those affected by breast cancer. My Journey was developed with assistance from breast cancer specialists. My Journey offers information and support tailored to specific needs based on browsing history and each person’s stages of their breast cancer experience, with dedicated pathways for those diagnosed with Early Breast Cancer, Ductal Carcinoma in Situ, Metastatic Breast Cancer and post treatment. It provides immediate updates as new insights, research and treatment options become available
I wanted to prepare myself. I believe knowledge is power and I didn’t want to be in the dark. My Journey was able to follow me throughout my treatment so I could access information that was suitable to me at that time. The information is compassionate, supportive and kind.
My Journey user
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Case for Support 2023
particular, those affected by breast cancer from rural and remote locations and First Peoples experience higher breast cancer mortality rates. My Journey, which is available completely free of charge, contains over 300 articles, embedded with additional digital resources. As treatments for breast cancer change frequently, this information is continually updated. Over 15,000 people, including health professionals, are currently using My Journey. With many Australians using My Journey, there is an opportunity for BCNA to track and benchmark users’ experiences. By analysing these data and identifying potential gaps in breast cancer services quickly, My Journey could be better utilised to provide care and support to those who need it.
Why is funding needed? • To create the services currently delivered by My Journey on our new single Digital Experience Platform and migrate existing members without impacting their experience. • To review and develop content as new treatment and supportive care options become available. • To review and develop content for specific groups which are tailored to their needs, such as First Peoples. • To develop a budget tracker and other functionality, such as text message alerts, to assist those diagnosed to manage out of pocket costs and alert them to new content. • To analyse user data, including member feedback, and provide an up-to-date map of breast cancer service provision across Australia, identifying gaps to address through BCNA’s policy and advocacy work.
FUNDING OPPORTUNITIES (ONE-OFF)
My Journey Costs of transitioning all services to one platform
$150,000 $22,500
Administration @15%
TOTAL
$172,500
FUNDING OPPORTUNITIES (RECURRING)
My Journey Licence costs per annum, based on current usage Staff to facilitate, look for insights in behaviour, review feedback and recommend improvements IT support, administration and enhancement
$150,000
$50,000 $25,000 $225,000
Total Annual Recurring costs
Administration @15%
$33,750
TOTAL
$258,750
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Breast Cancer Network Australia
Breconda Breast Reconstruction Decision Aid
More information is needed than is given in the hospital brochures. Doctors need to explain more clearly the reality of reconstruction and show examples of women with a natural breast and a reconstructed breast. They need to make it clear that only by doing surgery to the natural breast can they make your reconstructed breast match. They need to discuss the loss of feeling that will occur in any surgery. There needs to be support offered for the changes to women’s lives.
The Cancer Australia Statement Influencing best practice in breast cancer emphasises that all women recommended for a mastectomy should be offered the opportunity to discuss options for breast reconstruction prior to surgery. However, our research shows that many women are not being offered this option as part of standard care. Our findings suggest that improvements in relation to information provision and access to breast reconstruction are needed. Breconda is an online decision aid that helps women consider their options for breast reconstruction by accessing the clinical knowledge of experts. It ensures patients are given back control through relevant, realistic and timely information—information is power.
Breast Reconstruction in Australia Report, August 2021
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Case for Support 2023
Breconda addresses the greatest need that was identified in our breast reconstruction survey and report Breast Reconstruction in Australia , completed in 2021. Keeping Breconda’s information up to date with the latest in treatment options and ensuring it is promoted to women when they need it is essential.
Why is funding needed? • To move Breconda to a shared digital platform with BCNA’s other information services so that it is accessible to more women. • Staff resources to regularly review and update Breconda’s information with changes to reconstruction options. • Funds to maintain the digital infrastructure that houses Breconda.
• Promotion of Breconda to health professionals and consumers.
FUNDING OPPORTUNITIES (ONE-OFF)
Breconda Costs of transitioning all services to one platform
$20,000
Administration @15%
$3,000
TOTAL
$23,000
FUNDING OPPORTUNITIES (RECURRING)
Breconda Licence costs per annum, based on current usage Staff to facilitate, look for insights in behaviour, review feedback and recommend improvements IT support, administration and enhancement
$5,000
$10,000 $10,000 $25,000
Total Annual Recurring costs
Administration @15%
$3,750
TOTAL
$28,750
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Breast Cancer Network Australia
BCNA Endowment Fund
An unrestricted gift or bequest to BCNA’s Endowment Fund helps to generate an annual flow of income to support BCNA’s current priorities now and into the future. The Endowment Fund is vital to ensuring BCNA continues to be a strong, truly independent voice that can hold health sector players—health providers, pharmaceutical companies and government—to account. BCNA’s Endowment Fund is governed by the BCNA Board of Directors and a full suite of investment and donation policies is in place. Our goal is to build and preserve a corpus that enables BCNA to maintain its independence and represent consumers, while maintaining financial capacity to provide vital information, support, connection and advocacy for our network. The current Endowment is $5 million and our aim is to build this to $10 million over five years.
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For more information about BCNA please contact: Kathryn Austin National Major Gifts Manager Breast Cancer Network Australia M: 0415 534 937 E: kaustin@bcna.org.au
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BREAST CANCER NETWORK AUSTRALIA Level 1, 293 Camberwell Road, Camberwell, VIC 3124
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info@bcna.org.au
bcna.org.au
1800 500 258
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